Sheikh-Oleslami Sara, Rempel Lucas, Illmann Caroline F, Nicholson Emma, Isaac Kathryn V
From the Faculty of Medicine, The University of British Columbia, Vancouver, British Columbia, Canada.
Division of Plastic Surgery, Department of Surgery, The University of British Columbia, Vancouver, British Columbia, Canada.
Plast Reconstr Surg Glob Open. 2025 Apr 21;13(4):e6710. doi: 10.1097/GOX.0000000000006710. eCollection 2025 Apr.
Breast reconstruction is an essential consideration for patients with breast cancer undergoing a mastectomy. Patients commonly report inadequate education as an important cause of dissatisfaction with breast reconstructive care. Information sources for breast reconstruction vary in quality, accuracy, and validity. We sought to determine what academic and nonacademic resources exist supporting decision-making for patients undergoing breast reconstruction.
A search was conducted of both academic literature and nonacademic social media sources. Three academic databases and 5 social media platforms were searched using keywords. Three independent reviewers performed the selection and data extraction of sources that met the inclusion criteria.
A total of 1172 academic articles and 1419 nonacademic records were screened, with 14 and 9 included for final review, respectively. Of the 5 nonacademic mediums searched, none were included from TikTok and Instagram. One decision-making tool (DMT) was included from Twitter, 4 from YouTube, and 4 from Google. Overall, the quality of available DMTs was very good. The one included academic DMT had a mean DISCERN score of 5, whereas the 4 DMTs from Google and Twitter had a median DISCERN score of 4. YouTube videos were ranked using the modified DISCERN tool with a median score of 5.
Accessibility was found to be a significant barrier for patients in academic and nonacademic platforms with significant knowledge required to effectively search these platforms for resources. Efforts must be made to improve accessibility and awareness of these DMTs, as such tools are essential in shared decision-making.
乳房重建是接受乳房切除术的乳腺癌患者的重要考量因素。患者普遍认为教育不足是对乳房重建护理不满的一个重要原因。乳房重建的信息来源在质量、准确性和有效性方面各不相同。我们试图确定有哪些学术和非学术资源可支持乳房重建患者的决策。
对学术文献和非学术社交媒体来源进行了检索。使用关键词搜索了三个学术数据库和五个社交媒体平台。由三名独立评审员对符合纳入标准的来源进行筛选和数据提取。
共筛选了1172篇学术文章和1419条非学术记录，最终分别纳入14篇和9篇进行评审。在所搜索的5个非学术媒介中，TikTok和Instagram均无相关内容被纳入。Twitter纳入了1个决策工具（DMT），YouTube纳入了4个，Google纳入了4个。总体而言，现有DMT的质量非常好。纳入的1个学术DMT的DISCERN平均评分为5分，而Google和Twitter的4个DMT的DISCERN中位数评分为4分。YouTube视频使用改良的DISCERN工具进行排名，中位数评分为5分。
可及性被发现是学术和非学术平台上患者面临的一个重大障碍，有效搜索这些平台获取资源需要大量知识。必须努力提高这些DMTs的可及性和认知度，因为此类工具在共同决策中至关重要。
