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评估严重神经运动和智力残疾儿童家庭中父母压力的重要性——一项初步研究。

The importance of assessing parent stress in families with children with severe neuromotor and intellectual disability - a pilot study.

机构信息

Cardinal Ferrari Centre, Santo Stefano Riabilitazione, KOS Group, Fontanellato, Parma, Italy.

出版信息

Appl Neuropsychol Child. 2022 Oct-Dec;11(4):804-810. doi: 10.1080/21622965.2021.1971525. Epub 2021 Sep 7.

DOI:10.1080/21622965.2021.1971525
PMID:34491869
Abstract

Parent-related stress represents the level of dysfunction in the parent-child system related to the parents' functioning. The aim of this retrospective pilot study was to assess the degree of stress perceived by mothers and fathers, in the framework of a family-centred approach to rehabilitation.We considered 43 parents of 29 children with cerebral palsy, genetic disorders or brain injury admitted to a neurological rehabilitation center. Parenting stress was assessed with the self-report questionnaire and a semi-structured investigation of situational stress factors of the family. The cognitive and motor disability of the children were assessed with the (DSM-5) and the GMFCS), respectively.The results showed that parental stress is directly correlated with the level of cognitive and behavioral disability and not with motor disability. No significant difference was found in the level of stress perceived by mothers and fathers. The effect of a worsening occupational situation seemed to influence the perception of stress more than a change in the formal relationship of the couple, but neither was statistically significant.

摘要

父母相关压力代表与父母功能相关的亲子系统功能障碍的程度。本回顾性初步研究的目的是评估在以家庭为中心的康复框架下,母亲和父亲所感受到的压力程度。我们考虑了 43 名脑瘫、遗传障碍或脑损伤儿童的父母,这些儿童被收治在一家神经康复中心。采用自我报告问卷和家庭情境压力因素的半结构化调查评估养育压力。儿童的认知和运动障碍分别采用(DSM-5)和(GMFCS)评估。结果表明,父母压力与认知和行为障碍的程度直接相关,而与运动障碍无关。母亲和父亲所感受到的压力水平没有显著差异。职业状况恶化的影响似乎比夫妻关系形式的变化更能影响压力的感知,但两者均无统计学意义。

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