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颞下颌关节紊乱病患者的经历:关于诊断和治疗途径的调查

Patient Experiences With Temporomandibular Disorders: A Survey on the Pathways in Diagnosis and Treatment.

作者信息

Manfredini Aurora, Saracutu Ovidiu Ionut, Greene Charles S, Ferrari Marco, Manfredini Daniele

机构信息

School of Dentistry, University of Ferrara, Ferrara, Italy.

Department of Medical Biotechnologies, University of Siena, Siena, Italy.

出版信息

J Oral Rehabil. 2025 Sep;52(9):1481-1488. doi: 10.1111/joor.13993. Epub 2025 May 14.

Abstract

BACKGROUND

Despite the availability of evidence-based guidelines on temporomandibular disorders (TMD), some past theories of TMD aetiology, diagnosis and treatment are still diffused among clinical practitioners.

OBJECTIVE(S): The study aims to gather and analyse patient experiences and outcomes related to their seeking care for TMD symptoms.

METHODS

In November 2023, a survey to collect comprehensive data on patients' diagnostic journeys, treatment experiences, and outcomes was distributed through online platforms and TMD patient support groups in a variety of countries. Correlation between different variables was assessed and comparisons were made between patients with a different history of treatment-seeking experiences.

RESULTS

A total of 153 participants filled out the survey. Of them, 31.4% (N = 48) needed to consult two or three professionals, while some of them saw up to four or five (N = 27, 17.6%). Moreover, patients experienced a wide range of pain duration time before receiving a diagnosis. Almost one-third of patients were in pain for more than one year (N = 43, 28.1%), and a remarkable number never received appropriate care (N = 30, 19.6%). Additionally, those patients who saw one or more dentists who emphasised abnormalities of dental occlusion or jaw position ended up consulting significantly more health providers before receiving a diagnosis than those who did not have that experience (p = 0.0062).

CONCLUSION

There is a need to better implement knowledge about TMDs among health-care providers, starting from improving the quality of education at the university course level and continuing into various post-graduate educational offerings.

摘要

背景

尽管有关于颞下颌关节紊乱病(TMD)的循证指南,但过去一些关于TMD病因、诊断和治疗的理论仍在临床医生中广泛传播。

目的

本研究旨在收集和分析患者因TMD症状寻求治疗的经历及结果。

方法

2023年11月,通过在线平台和多个国家的TMD患者支持小组开展了一项调查,以收集患者诊断过程、治疗经历和结果的全面数据。评估了不同变量之间的相关性,并对有不同寻求治疗经历的患者进行了比较。

结果

共有153名参与者填写了调查问卷。其中,31.4%(N = 48)的患者需要咨询两到三名专业人员,而其中一些患者咨询了四到五名专业人员(N = 27,17.6%)。此外,患者在得到诊断之前经历了广泛的疼痛持续时间。近三分之一的患者疼痛超过一年(N = 43,28.1%),相当数量的患者从未得到过适当的治疗(N = 30,19.6%)。此外,那些看过一名或多名强调牙合或颌位异常的牙医的患者,在得到诊断之前咨询的医疗服务提供者明显多于没有这种经历的患者(p = 0.0062)。

结论

有必要在医疗服务提供者中更好地普及TMD知识,从提高大学课程教育质量开始,并持续到各种研究生教育课程。

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