Department of Public Health, Erasmus MC University Medical Center, Rotterdam, Netherlands.
R&D+i Consultancy, Kveloce I+D+i, Valencia, Spain.
J Med Internet Res. 2023 Apr 4;25:e42556. doi: 10.2196/42556.
Digital technologies such as mobile apps and robotics have the potential to involve stroke patients better in the care process and to promote self-management. However, barriers exist that constrain the adoption and acceptance of technology in clinical practice. Examples of barriers are privacy concerns, challenges regarding usability, and the perception that there is no need for health-related technology. To address these barriers, co-design can be used to enable patients to reflect on their experiences of a service and to tailor digital technologies to the needs and preferences of end users regarding content and usability.
This study aims to explore the perspectives of stroke patients toward how digital health technology could support self-management regarding health and well-being, as well as integrated stroke care.
A qualitative study was conducted to understand patient perspectives. Data were collected in co-design sessions during the ValueCare study. Patients from a Dutch hospital who experienced an ischemic stroke (n=36) within the past 18 months were invited to participate. Data collection took place between December 2020 and April 2021 via one-to-one telephone interviews. A short self-report questionnaire was used to collect data on sociodemographics, disease-specific information, and technology use. All interviews were audio-taped and transcribed verbatim. The interview data were analyzed using a thematic approach.
Patients held mixed attitudes toward digital health technologies. Some patients viewed digital technology as a convenient product or service, while others expressed no desire or need to use technology for self-management or care. Digital features suggested by stroke patients included (1) information about the causes of stroke, medication, prognosis, and follow-up care; (2) an online library with information regarding stroke-related health and care issues; (3) a personal health record by which patients can retrieve and manage their own health information; and (4) online rehabilitation support to empower patients to exercise at home. Regarding the user interface of future digital health technology, patients emphasized the need for easy-to-use and simple designs.
Stroke patients mentioned credible health information, an online library with stroke-related health and care information, a personal health record, and online rehabilitation support as the main features to include in future digital health technologies. We recommend that developers and designers of digital health for stroke care listen to the "voice of the stroke patients" regarding both functionality and the characteristics of the interface.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.1186/s12877-022-03333-8.
移动应用程序和机器人等数字技术有可能让中风患者更好地参与护理过程并促进自我管理。然而，存在一些限制因素，这些因素限制了技术在临床实践中的采用和接受。例如，隐私问题、可用性方面的挑战以及对健康相关技术没有需求的看法等。为了解决这些障碍，可以使用共同设计来使患者能够反思他们对服务的体验，并根据最终用户对内容和可用性的需求和偏好来定制数字技术。
本研究旨在探讨中风患者对数字健康技术如何支持健康和福祉以及综合中风护理的自我管理的看法。
进行了一项定性研究，以了解患者的观点。数据是通过 ValueCare 研究中的共同设计会议收集的。邀请在过去 18 个月内经历过缺血性中风的荷兰医院的患者参加(n=36)。数据收集于 2020 年 12 月至 2021 年 4 月之间通过一对一的电话访谈进行。使用简短的自我报告问卷收集社会人口统计学、疾病特定信息和技术使用方面的数据。所有访谈均进行录音并逐字记录。使用主题方法分析访谈数据。
患者对数字健康技术的态度喜忧参半。一些患者认为数字技术是一种方便的产品或服务，而另一些患者则表示没有意愿或需求使用技术进行自我管理或护理。中风患者提出的数字功能包括(1)有关中风原因、药物、预后和随访护理的信息；(2)一个包含中风相关健康和护理问题信息的在线图书馆；(3)患者可以检索和管理自己健康信息的个人健康记录；(4)在线康复支持，使患者能够在家中进行锻炼。关于未来数字健康技术的用户界面，患者强调需要易于使用和简单的设计。
中风患者提到了可信的健康信息、包含中风相关健康和护理信息的在线图书馆、个人健康记录和在线康复支持作为未来数字健康技术中应包含的主要功能。我们建议中风护理数字健康的开发者和设计者应听取“中风患者的声音”，既要关注功能，也要关注界面特征。
国际注册报告标识符(IRRID)：RR2-10.1186/s12877-022-03333-8。
