Bradshaw Tiffany K, Gibbons James T D, Wilson Andrew C, Bates Amber, Simpson Shannon J, Downs Jenny
Wal-Yan Respiratory Research Centre, The Kids Research Institute Australia, Perth, WA, Australia.
Curtin School of Allied Health, Faculty of Health Sciences, Curtin University, Perth, WA, Australia.
Qual Life Res. 2025 May 23. doi: 10.1007/s11136-025-03993-0.
There is no published information on preterm children's activities and participation during middle childhood, a time when growth and development are characterised by increasing motor, reasoning, self-regulation, social and executive functioning skills. This study explored the health, activities and participation of children born very preterm during middle childhood (6-9 years) from the perspectives of their parents.
This was a qualitative descriptive design. Twenty parents of 27 very preterm children born < 32 weeks gestation participated in semi-structured interviews to explore their child's health, behaviour, functioning and participation in school, at home and in the community along with environment and personal factors that influenced the child's activities and participation. Interview data were coded to each of the International Classification of Functioning in Disability (ICF-CY) domains.
Parents reported a broad range of health needs and participation outcomes. Parents reported challenges related to respiratory health, mental health and behaviour, sleep, nutrition and feeding. The child's participation and functioning were influenced by both personal and environmental factors including but not limited to parenting styles, education and learning support, access to health support and personal preferences and motivations.
Preterm birth is associated with impacts on the child's health, activities and participation. This comprehensive view on the child's health and wellbeing can aid clinicians in their management of these children.
关于学龄中期早产儿的活动和参与情况，目前尚无公开信息。学龄中期是儿童生长发育的一个阶段，其特点是运动、推理、自我调节、社交和执行功能技能不断增强。本研究从父母的角度探讨了学龄中期（6至9岁）极早早产儿的健康、活动和参与情况。
这是一项定性描述性设计。27名孕周小于32周的极早早产儿的20名父母参与了半结构化访谈，以探讨他们孩子的健康、行为、功能以及在学校、家庭和社区中的参与情况，以及影响孩子活动和参与的环境和个人因素。访谈数据被编码到国际功能、残疾和健康分类儿童版（ICF-CY）的各个领域。
父母报告了广泛的健康需求和参与结果。父母报告了与呼吸健康、心理健康和行为、睡眠、营养和喂养相关的挑战。孩子的参与和功能受到个人和环境因素的影响，包括但不限于养育方式、教育和学习支持、获得健康支持以及个人偏好和动机。
早产与对孩子的健康、活动和参与产生影响有关。这种对孩子健康和幸福的全面看法有助于临床医生对这些孩子进行管理。
