McQuire Tracy, Boisvenue Jamie, Mackett Katharine, Maghera Jasmine, Makarski Julie, Martin Al, Mytkolli Linxi, Lim Mildred, Pow Conrad, Witteman Holly O
Diabetes Action Canada, Toronto, ON, Canada.
University Health Network, Toronto, ON, Canada.
Res Involv Engagem. 2025 May 26;11(1):55. doi: 10.1186/s40900-025-00729-9.
Health-related academic events that focus on patient-oriented research should prioritize the needs and interests of those most affected by their outcomes. Diabetes Action Canada (DAC) has hosted six in-person workshops over eight years, bringing together over 100 participants from research, healthcare delivery, government, non-profit organizations, and communities with lived experience of diabetes. This paper outlines key lessons and best practices from Diabetes Action Canada's collaborative approach to workshop co-design with Patient Partners. For the 2024 workshop, a planning committee, largely composed of Patient Partners, played a central role in shaping the agenda. Their contributions ensured active patient participation, addressed power imbalances, fostered inclusivity, and created supportive spaces. Strategies such as co-designed agendas, symbolic markers for patient-led presentations, and facilitated networking sessions effectively enhanced engagement. Evaluations highlighted the importance of equitable participation and multidisciplinary collaboration, emphasizing the scalability of DAC's co-design principles for diverse research and healthcare contexts. These insights provide a foundation for inclusive, impactful, and patient-centered event planning.
专注于以患者为导向研究的健康相关学术活动应优先考虑受其结果影响最大的人群的需求和利益。加拿大糖尿病行动组织(DAC)在八年时间里举办了六次面对面研讨会,汇聚了来自研究、医疗服务、政府、非营利组织以及有糖尿病生活经历的社区的100多名参与者。本文概述了加拿大糖尿病行动组织与患者合作伙伴共同设计研讨会的协作方法中的关键经验教训和最佳实践。在2024年的研讨会上,一个主要由患者合作伙伴组成的规划委员会在制定议程方面发挥了核心作用。他们的贡献确保了患者的积极参与,解决了权力不平衡问题,促进了包容性,并营造了支持性的空间。共同设计议程、为患者主导的演讲设置标志性标识以及组织促进交流的会议等策略有效地提高了参与度。评估强调了公平参与和多学科合作的重要性,突出了DAC共同设计原则在不同研究和医疗环境中的可扩展性。这些见解为包容性、有影响力且以患者为中心的活动策划奠定了基础。