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本文引用的文献

1
[DNVF Memorandum Health Literacy (Part 1) - Background, Relevance, Research Topics and Questions in Health Services Research].[糖尿病神经病变基金会备忘录:健康素养(第1部分)——卫生服务研究中的背景、相关性、研究主题和问题]
Gesundheitswesen. 2020 Jul;82(7):e77-e93. doi: 10.1055/a-1191-3689. Epub 2020 Jul 22.
2
[The role of self-help groups and self-help organisations in promoting health literacy in the public].[自助团体和自助组织在提高公众健康素养方面的作用]
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2019 Jan;62(1):17-25. doi: 10.1007/s00103-018-2857-1.
3
[Health literacy of adults in Germany: Findings from the German Health Update (GEDA) study].[德国成年人的健康素养:德国健康更新(GEDA)研究的结果]
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2015 Sep;58(9):942-50. doi: 10.1007/s00103-015-2200-z.

[新冠疫情期间的自助小组与健康素养:定性GemSe研究的结果]

[Self-help groups and health literacy during the Corona pandemic: Results from the qualitative GeMSe study].

作者信息

Kogel Lisa Marie, Steeb Natalie, Rathmann Katharina

机构信息

Fachbereich Pflege und Gesundheit, Public Health Zentrum Fulda (PHZF), Hochschule Fulda, Fulda, Deutschland.

出版信息

Pravent Gesundh. 2022;17(3):357-363. doi: 10.1007/s11553-021-00881-6. Epub 2021 Jul 26.

DOI:10.1007/s11553-021-00881-6
PMID:40477349
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8311402/
Abstract

BACKGROUND

The Corona pandemic poses multiple challenges for people with impairments, including managing health information. To date, little is known about the role of self-help in promoting health literacy among its members during the Corona pandemic.

METHODS

"The Health Literacy of Self-Help group members: Challenges of the Corona-pandemic (GeMSe)" study is based on a qualitative study design. Field access was provided by self-help advocacy groups throughout Germany. For this purpose, telephone interviews were conducted from July-October 2020 with  = 19 representatives of self-help groups, transcribed and content-analyzed.

RESULTS

Self-help group representatives reported strengths and weaknesses in members' use of health information during the Corona pandemic. Weaknesses were reported primarily among older members, those with low levels of education, and those with immigrant backgrounds. Strengths were observed by the representatives among long-term members and among members who continuously educate themselves about their disease.

DISCUSSION

Self-help groups are perceived as providing important support to members in dealing with health information during the Corona pandemic. One particular benefit to members is the self-help group's review and compilation of health information according to individual needs. Challenges can arise due to difficulties in German language and understanding, e.g., as a result of a migration background. The expansion of digital offers has proven helpful during this time. In this context, support should increasingly consider older members and members with low financial means, as they have less access to digital offers especially during the Corona pandemic.

摘要

背景

新冠疫情给残障人士带来了多重挑战,包括健康信息管理。迄今为止,关于自助在新冠疫情期间促进其成员健康素养方面的作用,人们了解甚少。

方法

“自助团体成员的健康素养:新冠疫情的挑战(GeMSe)”研究基于定性研究设计。德国各地的自助倡导团体提供了实地调研机会。为此,于2020年7月至10月对19名自助团体代表进行了电话访谈,并进行了转录和内容分析。

结果

自助团体代表报告了新冠疫情期间成员在使用健康信息方面的优势和劣势。劣势主要体现在老年成员、低学历成员以及有移民背景的成员中。代表们观察到长期成员以及持续自我学习疾病知识的成员具有优势。

讨论

在新冠疫情期间,自助团体被视为在处理健康信息方面为成员提供了重要支持。对成员的一个特别好处是自助团体根据个人需求对健康信息进行审查和汇编。由于德语语言和理解方面的困难,例如由于移民背景,可能会出现挑战。在此期间,数字服务的扩展已证明是有帮助的。在这种情况下,支持应越来越多地考虑老年成员和经济条件较差的成员,因为他们尤其在新冠疫情期间较少能使用数字服务。