Rubio-Garrido Patricia, Bazo-Hernández Leticia, Enrich-Font Anna, Jiménez-Herrera María Francisca
Department of Nursing, Rovira i Virgili University, Tarragona, Spain.
Department of Nursing, Vall d'Hebron University Hospital, Barcelona, Spain.
Scand J Caring Sci. 2025 Jun;39(2):e70055. doi: 10.1111/scs.70055.
Being admitted to a paediatric intensive care unit is a stressful situation for the minor and their family, causing emotional alterations that generate changes in psychological, physical and social aspects, as well as on how to take care of the minor.
The objective of this study was to explore the coping strategies experienced by families who have a minor admitted to the paediatric intensive care unit.
Phenomenological qualitative research study. A sample of 12 participants was obtained from families who had a prolonged admission to the paediatric intensive care unit of a minimum duration of 3 months and who were not in an end-of-life situation. The data analysis was carried out by deepening the study theme during the data collection of the three group interviews conducted.
This study is part of a predoctoral research project approved by the Ethics Committee of the Vall d'Hebrón University Hospital in Barcelona (approval code: PRAMI-273/2015).
Two main categories were identified that emerged from the families' perceptions related admission of their minors to the paediatric intensive care unit and their subsequent adaptation to the new situation: (1) Family self-perception: the families' own perceptions of different feelings and emotions experienced during admission and their interpretations are collected. (2) Role of the caregiver: understood as the families' perceptions of the capacity and willingness to face the new situation in the child's health-disease process; and 10 subcategories: training, comfort, confidence, fear, anxiety, impotence, loneliness, will, adaptability and reference family group.
The findings show the need to carry out an integrative approach to families which coexist in a paediatric intensive care unit; through the training of these families to be able to cope with health changes.
入住儿科重症监护病房对患儿及其家庭来说是一种压力巨大的情况，会引发情绪变化，进而在心理、身体和社会层面产生改变，以及影响照顾患儿的方式。
本研究的目的是探究患儿入住儿科重症监护病房的家庭所采用的应对策略。
现象学定性研究。从入住儿科重症监护病房时间延长至至少3个月且并非处于临终状态的家庭中选取了12名参与者作为样本。在进行的三组访谈的数据收集过程中，通过深入研究主题来进行数据分析。
本研究是巴塞罗那瓦尔德希伯伦大学医院伦理委员会批准的博士前研究项目的一部分（批准代码：PRAMI - 273/2015）。
从家庭对其未成年子女入住儿科重症监护病房及其随后适应新情况的认知中，识别出两个主要类别：（1）家庭自我认知：收集家庭对住院期间经历的不同感受和情绪及其解读的自身认知。（2）照顾者的角色：被理解为家庭对在孩子健康 - 疾病过程中面对新情况的能力和意愿的认知；以及10个子类别：培训、安慰、信心、恐惧、焦虑、无力感、孤独感、意愿、适应能力和参考家庭群体。
研究结果表明，有必要对在儿科重症监护病房中共同生活的家庭采取综合方法；通过培训这些家庭使其能够应对健康变化。
