Wang Jennifer, Patel Paras, Mineroff Jessica, Jagdeo Jared
Mses. Wang and Mineroff and Dr. Jagdeo are with the Department of Dermatology at the State University of New York, Downstate Health Sciences University in Brooklyn, New York.
Mses. Wang and Mineroff, Mr. Patel, and Dr. Jagdeo are with the Dermatology Service at the Veterans Affairs New York Harbor Healthcare System at the Brooklyn Campus in Brooklyn, New York.
J Clin Aesthet Dermatol. 2025 Jun;18(6):14-17.
The rapid expansion of the internet, specifically social media, has reshaped how patients approach their health and obtain their medical information. Specifically, Reddit communities have become important spaces for patients with psoriasis to engage in discussions, particularly regarding the newly United States Food and Drug Administration-approved medication, risankizumab. The objective of this study was to analyze questions from patients with psoriasis about risankizumab on Reddit.
The authors analyzed all risankizumab-related questions posted on the r/Psoriasis and r/Skyrizi subreddits. Questions were categorized and subcategorized for analysis.
A total of 222 questions from 181 posts were analyzed. The largest proportion of questions were regarding side effects (26.1%) and cost and insurance (14.9%). This analysis of risankizumab questions on Reddit reveals key insights into the informational needs of patients with psoriasis and demonstrates the value of utilizing online platforms to better understand patient concerns.
One limitation of this study is that Reddit users may not be representative of the overall psoriasis population.
The study presents a distinct approach by harnessing the power of social media data to understand patient perspectives, which may not be readily apparent in clinical settings. This information may help physicians improve the overall patient experience and provide more tailored clinical care.
互联网尤其是社交媒体的迅速发展，重塑了患者对待自身健康及获取医疗信息的方式。具体而言，Reddit社区已成为银屑病患者进行讨论的重要场所，特别是关于美国食品药品监督管理局新批准的药物司库奇尤单抗的讨论。本研究的目的是分析Reddit上银屑病患者关于司库奇尤单抗的问题。
作者分析了在r/Psoriasis和r/Skyrizi子版块上发布的所有与司库奇尤单抗相关的问题。对问题进行分类和再分类以进行分析。
共分析了来自181个帖子的222个问题。问题中占比最大的是关于副作用（26.1%）以及费用和保险（14.9%）。对Reddit上司库奇尤单抗问题的这一分析揭示了银屑病患者信息需求的关键见解，并证明了利用在线平台更好地了解患者担忧的价值。
本研究的一个局限性是Reddit用户可能不代表整个银屑病患者群体。
该研究通过利用社交媒体数据的力量来了解患者观点，呈现了一种独特的方法，而这在临床环境中可能并不容易显现。这些信息可能有助于医生改善整体患者体验并提供更具针对性的临床护理。
