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为寻求生育治疗的癌症患者进行的医疗众筹:一项横断面分析。

Medical crowdfunding for cancer patients seeking fertility treatments: a cross-sectional analysis.

作者信息

Frankel Robyn A, Timmel Victoria, Peyser Alexandra, Abittan Baruch, Mullin Christine, Goldman Randi H

机构信息

Department of Reproductive Endocrinology and Infertility, Northwell, New Hyde Park, New York.

Department of Obstetrics and Gynecology, Northwell, New Hyde Park, New York.

出版信息

F S Rep. 2025 Jan 28;6(2):193-198. doi: 10.1016/j.xfre.2025.01.016. eCollection 2025 Jun.

Abstract

OBJECTIVE

To explore the use of crowdfunding among patients with cancer seeking funding to offset the cost of fertility treatments.

DESIGN

Cross-sectional analysis of campaigns initiated on a single popular crowdfunding website, GoFundMe, for the purpose of subsidizing fertility treatments in patients with cancer from April to May 2022.

SUBJECTS

Patients utilizing crowdfunding campaigns to subsidize fertility treatments for either themselves or a partner with a cancer diagnosis. Campaigns unrelated to both cancer and fertility treatment coverage were excluded.

EXPOSURE

Not applicable.

MAIN OUTCOME MEASURES

Dollar amount requested; amount and percent of goal obtained; top donation amount; number of donors or comments; geographic location; and cancer diagnosis. Chi-squared analyses and ANOVA statistics were used to characterize prevalence of geographic locations represented and differences in amount of financial support, respectively. A <.05 was considered statistically significant.

RESULTS

A total of 1,195 campaigns were collected, spanning all regions of the United States and reflecting 23 different cancer diagnoses. The majority of campaigns resulted from breast (36.0%), lymphoma (10.6%), ovarian (7.1%), testicular (6.0%), or cervical (5.4%) cancer diagnoses. The average amount of funding requested across all campaigns was $31,390, with an average of $12,317 raised per campaign. More campaigns were initiated in Southern and Western regions of the United States compared with Northeastern and Midwestern (<.001). However, Northeastern campaigns raised more money (=.001), came closer to reaching their goals (=.03), and gained more social support, as evidenced by number of donors (<.001) and comments (=.04). No statistically significant differences in financial or social outcomes were noted among campaigns when stratified by cancer type.

CONCLUSION

Patients with cancer who desire or require fertility treatments often face tremendous financial and social difficulties. Our results suggest a higher financial burden on patients with cancer in Southern and Western states, despite being less likely to reach financial goals or obtain as much social support as Northeastern counterparts. Overall, the majority of campaigns did not meet their financial goals.

摘要

目的

探讨癌症患者利用众筹来筹集资金以抵消生育治疗费用的情况。

设计

对2022年4月至5月在一个热门众筹网站GoFundMe上发起的旨在补贴癌症患者生育治疗费用的活动进行横断面分析。

研究对象

利用众筹活动为自己或患有癌症的伴侣补贴生育治疗费用的患者。与癌症和生育治疗覆盖范围均无关的活动被排除。

暴露因素

不适用。

主要观察指标

请求的金额;获得的金额及目标达成百分比;最高捐赠金额;捐赠者或评论数量;地理位置;以及癌症诊断。分别使用卡方分析和方差分析统计来描述所代表的地理位置的患病率以及财政支持金额的差异。P<0.05被认为具有统计学意义。

结果

共收集到1195个活动,覆盖美国所有地区,反映了23种不同的癌症诊断。大多数活动源于乳腺癌(36.0%)、淋巴瘤(10.6%)、卵巢癌(7.1%)、睾丸癌(6.0%)或宫颈癌(5.4%)诊断。所有活动请求的平均资金额为31,390美元,每个活动平均筹集到12,317美元。与东北部和中西部地区相比,美国南部和西部地区发起的活动更多(P<0.001)。然而,东北部地区的活动筹集到了更多资金(P=0.001),更接近达成目标(P=0.03),并且获得了更多社会支持,从捐赠者数量(P<0.001)和评论数量(P=0.04)可以看出。按癌症类型分层时,各活动在财务或社会结果方面未发现统计学上的显著差异。

结论

希望或需要进行生育治疗的癌症患者往往面临巨大的经济和社会困难。我们的结果表明,南部和西部各州的癌症患者经济负担更重,尽管他们实现财务目标的可能性较小,或者获得的社会支持不如东北部的患者。总体而言,大多数活动未能达到其财务目标。

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