Wang Haisheng, Zhang Huahong, Cao Jiamin, Zhang Feng, Xiong Wei
Department of Ophthalmology, The Third Xiangya Hospital, Central South University, No. 138 Tongzipo Road, Yuelu District, Changsha, 410013, Hunan, China.
Sci Rep. 2025 Jul 11;15(1):25134. doi: 10.1038/s41598-025-11147-y.
Thyroid eye disease (TED) is an autoimmune condition that commonly impacts patients' visual function, appearance, and psychological well-being. Challenges in TED management include low early detection rates and large variation in treatment response. Video platforms like TikTok and Bilibili are increasingly utilized for health information dissemination, yet the quality of TED treatment content on these platforms varies significantly. This cross-sectional study collected videos on "" from TikTok and Bilibili in March 2025. After applying exclusion criteria, 152 videos (89 from TikTok, 63 from Bilibili) were analyzed. Quality, reliability, and educational value were assessed using the Global Quality Score (GQS), modified DISCERN (mDISCERN), Patient Education Materials Assessment Tool (PEMAT), and Journal of the American Medical Association (JAMA) benchmark criteria. Additionally, the study analyzed video content integrity, uploader identity, and the correlation with user interaction data. TikTok videos scored higher in quality (GQS: 3.00 ± 0.58; mDISCERN: 3.17 ± 0.73) compared to Bilibili (GQS: 2.65 ± 0.65; mDISCERN: 2.21 ± 0.88; p < 0.001). On Bilibili, 62% of videos were uploaded by Traditional Chinese Medicine (TCM) physicians, yet these scored lower in quality. Professionally uploaded content, particularly by ophthalmologists, outperformed non-professional videos (e.g., patient). However, the video interaction metrics uploaded by patients showed better performance. In terms of content, only 27% addressed staged treatment, and 11.8% mentioned risk factor control. Correlation analysis revealed strong correlations between interaction data, but interaction data have no correlation with GQS, mDISCERN, and PEMAT scores. Short video platforms exhibit a dual role in the dissemination of TED treatment information: enhancing public awareness of diseases through professional content while risking misinformation due to inadequate auditing. Recommended interventions include robust platform certification, active involvement of medical organizations in content creation, and public education on prioritizing verified sources.
甲状腺眼病（TED）是一种自身免疫性疾病，通常会影响患者的视觉功能、外观和心理健康。TED管理面临的挑战包括早期检测率低和治疗反应差异大。TikTok和哔哩哔哩等视频平台越来越多地被用于健康信息传播，但这些平台上TED治疗内容的质量差异很大。这项横断面研究于2025年3月收集了TikTok和哔哩哔哩上关于“”的视频。应用排除标准后，分析了152个视频（89个来自TikTok，63个来自哔哩哔哩）。使用全球质量评分（GQS）、改良的辨别力（mDISCERN）、患者教育材料评估工具（PEMAT）和美国医学会杂志（JAMA）基准标准评估质量、可靠性和教育价值。此外，该研究还分析了视频内容完整性、上传者身份以及与用户互动数据的相关性。与哔哩哔哩（GQS：2.65±0.65；mDISCERN：2.21±0.88；p＜0.001）相比，TikTok视频在质量方面得分更高（GQS：3.00±0.58；mDISCERN：3.17±0.73）。在哔哩哔哩上，62%的视频由中医医生上传，但这些视频的质量得分较低。专业上传的内容，尤其是眼科医生上传的内容，表现优于非专业视频（如患者上传的视频）。然而，患者上传的视频互动指标表现更好。在内容方面，只有27%的视频涉及分期治疗问题，11.8%的视频提到了危险因素控制。相关性分析显示互动数据之间存在强相关性，但互动数据与GQS、mDISCERN和PEMAT评分无关。短视频平台在TED治疗信息传播中发挥着双重作用：通过专业内容提高公众对疾病的认识，同时由于审核不足存在错误信息传播的风险。推荐的干预措施包括强大的平台认证、医疗组织积极参与内容创作以及对优先选择经过验证的信息来源进行公众教育。
