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接受职业表现指导的多发性硬化症患者的经历。

The experience of people with multiple sclerosis who receive occupational performance coaching.

作者信息

Malakouti Niloufar, Kessler Dorothy, Finlayson Marcia, Stephens Samantha

机构信息

School of Rehabilitation Therapy, Queen's University, Louise D Acton Building, 31 George Street, Kingston, Ontario K7L 3N6, Canada.

Department of Neurology, Medical University of South Carolina, Murray Center for Research on Parkinson's Disease and related Disorders, 208 Rutledge B, Charleston, SC, United States.

出版信息

PEC Innov. 2025 Jul 3;7:100418. doi: 10.1016/j.pecinn.2025.100418. eCollection 2025 Dec.

Abstract

OBJECTIVE

To explore how Occupational Performance Coaching (OPC) influences self-management in the daily lives of people with Multiple Sclerosis (PwMS).

METHODS

A qualitative study involving 10 PwMS who underwent 6 sessions of telephone OPC over ten weeks. Interpretive description was used as the methodological approach. Participants were interviewed pre- and post-intervention, with thematic analysis performed on transcripts.

RESULTS

Pre-intervention themes included resisting MS, living with MS, ongoing challenges, and strategies. Post-intervention, the theme of resisting MS dissipated, with emergent sub-themes of planning ahead, being consistent, and talking about the plan. Participants reported reduced resistance towards their condition, a shift in their focus from problems towards solutions, and an enhancement of existing strategies and/or development of new strategies used to overcome ongoing challenges in living with MS.

CONCLUSION

OPC may facilitate a shift in focus towards solutions and enhance self-management strategies in PwMS.

INNOVATION

This study highlights OPC as a promising and innovative approach for addressing the self-management needs of individuals with MS, emphasizing its potential to enhance meaningful participation by fostering effective coping strategies and proactive attitudes.

摘要

目的

探讨职业表现指导(OPC)如何影响多发性硬化症患者(PwMS)日常生活中的自我管理。

方法

一项定性研究,涉及10名PwMS,他们在十周内接受了6次电话OPC。采用解释性描述作为方法。在干预前后对参与者进行访谈,并对访谈记录进行主题分析。

结果

干预前的主题包括抵抗多发性硬化症、与多发性硬化症共存、持续挑战和策略。干预后,抵抗多发性硬化症的主题消失,出现了提前规划、保持一致和谈论计划等新主题。参与者报告说,他们对自身状况的抵触情绪减少,关注点从问题转向解决方案,并且用于克服与多发性硬化症共存的持续挑战的现有策略得到加强和/或新策略得到发展。

结论

OPC可能有助于PwMS将关注点转向解决方案,并增强自我管理策略。

创新点

本研究强调OPC是一种有前景的创新方法,可满足MS患者的自我管理需求,强调其通过培养有效的应对策略和积极态度来增强有意义参与的潜力。

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Correlates of nutritional behavior in individuals with multiple sclerosis.多发性硬化症患者营养行为的相关因素。
Disabil Health J. 2012 Oct;5(4):284-91. doi: 10.1016/j.dhjo.2012.05.007. Epub 2012 Aug 17.

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