Colomer-Lahiguera Sara, Pozzar Rachel A, Harris Carolyn S, Brant Jeannine M, Conley Yvette P, Cooley Mary E, Eicher Manuela, Hinds Pamela S, Howell Doris, Mitchell Sandra A, Ribi Karin, Rosenzweig Margaret Quinn, Wesmiller Susan W, Miaskowski Christine, Hammer Marilyn J
Department of Oncology, Lausanne University Hospital, Institute of Higher Education and Research in Health Care, Ch. des Boveresses 155 - CH-1066 Epalinges, Lausanne, Switzerland.
The Phyllis F. Cantor Center for Research in Nursing and Patient Care Services, Dana-Farber Cancer Institute, 450 Brookline Avenue, BP 1140, Boston, MA, 02215, USA.
Eur J Oncol Nurs. 2025 Jan 31:102824. doi: 10.1016/j.ejon.2025.102824.
The inaugural "Cancer Symptom Science Expert Meeting", held in Lausanne Switzerland on October 11-12, 2023, brought together 40 nurse scientists from seven countries. The event aimed to enhance collaboration across the global symptom science community; identify common research interests, gaps in knowledge, and opportunities for research; and develop strategies to address challenges and accelerate symptom science research internationally. This White Paper summarizes discussions and recommendations deliberated during the meeting and introduces the Global Research Alliance in Symptom Science (GRASS).
Two-day meeting including presentations on critical issues and unanswered questions in cancer symptom science and other chronic conditions. Four working groups (WGs) identified gaps and opportunities associated with each topic and outlined strategic directions and essential actions to advance symptom science.
Recommendations from WGs included: WG1) optimal approaches to collect, analyze, and use symptom data for research and clinical purposes; WG2) development of a minimum dataset or common data model for symptom science; WG3) enhancement of best practices in implementation science strategies to improve utilization of evidence-based symptom management in routine care; and WG4) capacity building and infrastructure for the creation of a global alliance in symptom science (GRASS).
There is a global commitment to advance symptom science. The symposium established the groundwork for the development of GRASS, dedicated to symptom science in cancer and other chronic conditions. Future directions include establishing regular scientific meetings, fostering interdisciplinary collaboration, and engaging with symptom scientists.
2023年10月11日至12日在瑞士洛桑举行的首届“癌症症状科学专家会议”汇聚了来自七个国家的40名护士科学家。该活动旨在加强全球症状科学界的合作；确定共同的研究兴趣、知识差距和研究机会；并制定应对挑战和加速国际症状科学研究的策略。本白皮书总结了会议期间的讨论和建议，并介绍了全球症状科学研究联盟（GRASS）。
为期两天的会议，包括关于癌症症状科学和其他慢性病关键问题及未解决问题的报告。四个工作组（WG）确定了与每个主题相关的差距和机会，并概述了推进症状科学的战略方向和基本行动。
工作组的建议包括：WG1）用于研究和临床目的收集、分析和使用症状数据的最佳方法；WG2）为症状科学开发最小数据集或通用数据模型；WG3）加强实施科学策略中的最佳实践，以提高循证症状管理在常规护理中的利用率；WG4）建立全球症状科学联盟（GRASS）的能力建设和基础设施。
全球致力于推进症状科学。本次研讨会为GRASS的发展奠定了基础，GRASS专注于癌症和其他慢性病的症状科学。未来方向包括举办定期科学会议、促进跨学科合作以及与症状科学家合作。
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