Chan Arden, Kim Ejew, Hackney Madeleine E
College of Arts and Sciences, Emory University, Atlanta, GA, United States.
Division of Geriatrics and Gerontology, Department of Medicine, Emory University School of Medicine, Atlanta, GA, United States.
medRxiv. 2025 Jul 18:2025.07.17.25331719. doi: 10.1101/2025.07.17.25331719.
The Activity Theory of Aging suggests sustained activity aids older adults to maintain high quality of life. Caregiving resilience coaching like the Dreaming Together (DTog) program may have helped caregivers for people with Lewy body dementia (LBD) sustain supportive activity throughout challenges from caregiving and pandemics.
To determine experiences and attitudes on sustaining activities during the COVID-19 pandemic of LBD caregivers participating in caregiving resilience coaching two years into the pandemic.
13 participants (10 female; age=67.7 (9.9) years; Caregiver Quality of Life score=36 (12.9), "good"; Zarit Burden Interview score=72 (18.8), "mild to moderate") were recruited to participate in an Exit Interview held over Zoom right after DTog completion, between February and August of 2022. Participant responses were coded into themes through NVivo 12 software, for analysis relative to the Activity Theory of Aging.
Main themes: 1) Technology: An imperfect solution to social isolation; 2) Self-care is a necessity even during a crisis; 3) Caregivers Report A Reinforcing Negative Cycle of Declining Care Recipient Health and Adaptability.
LBD caregivers, after completing the DTog resilience coaching program, maintained self-care activities that improved life satisfaction. Programs and studies promoting resilience-building activity should be considered to supporting LBD caregiving.
衰老活动理论表明，持续的活动有助于老年人保持高质量生活。像“共同梦想”（DTog）项目这样的照护复原力指导可能有助于路易体痴呆（LBD）患者的照护者在面对照护和疫情带来的挑战时持续开展支持性活动。
确定在新冠疫情期间参与照护复原力指导两年后的LBD照护者在维持活动方面的经历和态度。
招募了13名参与者（10名女性；年龄=67.7（9.9）岁；照护者生活质量得分=36（12.9），“良好”；扎里特负担访谈得分=72（18.8），“轻度至中度”），于2022年2月至8月在DTog项目结束后立即通过Zoom进行离职访谈。参与者的回答通过NVivo 12软件编码成主题，以便相对于衰老活动理论进行分析。
主要主题：1）技术：解决社会隔离的不完美方案；2）即使在危机期间自我护理也是必要的；3）照护者报告护理接受者健康和适应能力下降的强化负循环。
LBD照护者在完成DTog复原力指导项目后，维持了提高生活满意度的自我护理活动。应考虑推广增强复原力活动的项目和研究，以支持LBD照护工作。
