Lasa Javier J, Han Brian, Shin Andrew Y, Dorfman Aaron, Kheir John N, Long Justin, Liou Aimee, Goldsmith Michael P
Division of Cardiology, Children's Medical Center, UT Southwestern Medical Center, 1925 Medical District Dr, Dallas, TX, 75235, USA.
Division of Critical Care, Children's Medical Center, UT Southwestern Medical Center, 1925 Medical District Dr, Dallas, TX, 75235, USA.
Pediatr Cardiol. 2025 Aug 26. doi: 10.1007/s00246-025-04001-5.
One of the most ubiquitous and profound impacts to the delivery of healthcare over the last three decades has been the introduction of digital technologies to healthcare workflows. Electronic medical records (EMR) have moved from rare to universal. Integration of digital healthcare technology has led to significant growth in data generation from a broad array of medical devices and episodes of care. This flow of data has accelerated methods and technologies for extraction, curation, labeling and analysis leading to new advancements in statistics and data science with the goal of supporting research and quality improvement efforts. With this technological revolution, the role of the physician experts-clinical informaticists-in this area has evolved from champion for use of an EMR system to specialized, multi-dimensional expertise in information technology systems, data science, federal and state healthcare information technology law, and advanced use of the EMR for healthcare delivery, research, quality, population health, and implementation science. These changes are seen throughout pediatric and adult healthcare spaces although some specialties stand to benefit the most from this revolution in healthcare technology. Caring for children with congenital and acquired heart disease requires both a broad infrastructure of imaging, data capture, and EMR systems as well as nuanced understanding of the broad and heterogeneous fields of pediatric and congenital heart disease. This perspectives manuscript introduces clinical informatics to the pediatric cardiology community while endorsing the pediatric cardiologist-informaticist as an essential member of the care model in this new era of pediatric cardiac care. The development and optimization of pediatric cardiology-specific healthcare technology and digital systems of cardiac imaging, procedures, remote monitoring, research/quality improvement databases, EMR optimization, care delivery, process improvement, change management, and leadership will be discussed from the perspective of the pediatric cardiologist-informaticist.
在过去三十年中，对医疗保健服务最普遍、最深远的影响之一，是将数字技术引入医疗工作流程。电子病历（EMR）已从罕见变为普及。数字医疗技术的整合，导致来自各种医疗设备和护理事件的数据生成显著增长。这种数据流加速了数据提取、管理、标注和分析的方法及技术，推动了统计学和数据科学的新进展，目标是支持研究和质量改进工作。随着这场技术革命，医生专家——临床信息学家——在这一领域的角色已从电子病历系统的使用者倡导者，演变为在信息技术系统、数据科学、联邦和州医疗信息技术法律，以及将电子病历用于医疗服务、研究、质量、人群健康和实施科学等方面的专业、多维度专业知识。这些变化在儿科和成人医疗领域都有体现，尽管某些专业将从这场医疗技术革命中获益最多。护理患有先天性和后天性心脏病的儿童，既需要广泛的成像、数据采集和电子病历系统基础设施，也需要对儿科和先天性心脏病这一广泛且多样的领域有细致入微的理解。这篇观点性文稿向儿科心脏病学界介绍临床信息学，同时认可儿科心脏病专家兼信息学家是这个儿科心脏护理新时代护理模式的重要成员。将从儿科心脏病专家兼信息学家的角度，讨论儿科心脏病学特定的医疗技术以及心脏成像、手术、远程监测、研究/质量改进数据库、电子病历优化、护理服务、流程改进、变革管理和领导力等数字系统的开发与优化。
