von Knorring Johanna, Lehti Arja, Lindvall Kristina, Semb Olof
Department of Clinical Sciences, Professional Development, Umeå University, Umeå, Sweden.
Department of Epidemiology and Global Health, Umeå University, Umeå, Sweden.
J Patient Exp. 2025 Aug 21;12:23743735251369702. doi: 10.1177/23743735251369702. eCollection 2025.
Empathy is crucial in forming a good relationship between patients and healthcare providers. Research on empathy in health care has largely focused on healthcare providers and students and less on the patient's perspective. This study's aim was to investigate patients' experience of empathy in healthcare interactions, to better understand and accommodate to patients' needs. Semi-structured interviews with patients were analyzed inspired by constructivist Grounded Theory. Three categories were formed-"I need you to focus on me," "I am more than my disease" and "I know myself and the disease" and the core category: "I want to be known as a whole human being." This study has provided a deeper insight on how empathy can be operationalized in healthcare interactions from a patient perspective. Patients experience health care interactions as dependent on empathic engagement and hampered by inequity due to knowledge hierarchies and lack of personal sharing. This study emphasizes patientś need for doctors to be more personal, and to experience a mutual sharing with their doctors to not feel vulnerable or left out in the consultation.
同理心对于在患者与医疗服务提供者之间建立良好关系至关重要。医疗保健领域中关于同理心的研究主要集中在医疗服务提供者和学生身上，而较少关注患者的视角。本研究的目的是调查患者在医疗互动中对同理心的体验，以便更好地理解并满足患者的需求。受建构主义扎根理论的启发，对患者进行的半结构化访谈得到了分析。形成了三个类别——“我需要你关注我”、“我不只是我的疾病”和“我了解自己和疾病”，以及核心类别：“我希望作为一个完整的人被了解”。本研究从患者角度对如何在医疗互动中实施同理心提供了更深入的见解。患者体验到医疗互动依赖于共情参与，并因知识等级制度和缺乏个人分享导致的不公平而受到阻碍。本研究强调患者需要医生更加个性化，并体验到与医生的相互分享，以免在咨询中感到脆弱或被忽视。
