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在新冠疫情期间,由护士在儿科肿瘤长期随访护理中实施过渡准备情况筛查:障碍与促进因素

Implementing transition readiness screening by nurses in pediatric oncology long-term follow-up care during the COVID-19 pandemic: Barriers and facilitators.

作者信息

Chapados Pascale, Monarque Marika, Melo Ariane, Provost Carole, Laverdière Caroline, Sultan Serge, Desjardins Leandra

机构信息

clinical psychology Psy.D(c), Sainte-Justine University Health Centre; Department of Psychology, Université de Montréal.

clinical psychology Ph.D.(c), Sainte-Justine University Health Centre; Department of Psychology, Université de Montréal.

出版信息

Can Oncol Nurs J. 2025 Jul 1;35(4):554-570. doi: 10.5737/23688076354554. eCollection 2025.

DOI:10.5737/23688076354554
PMID:40873595
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12379952/
Abstract

This study aimed to 1) describe adolescent cancer survivors' transition readiness and self-reported goals in a limited clinical sample; and 2) investigate healthcare providers' (HCPs') perspectives about a nurse-led clinical utilization of the Transition Readiness Assessment Questionnaire (TRAQ) and its subsequent discontinuation in a long-term follow-up (LTFU) pediatric oncology clinic. Data were collected from adolescent survivors (n = 7) at a tertiary pediatric hospital, while in-depth interviews were conducted with HCPs (n = 3) from the LTFU oncology clinic. Qualitative data revealed barriers, facilitators, and strategies for TRAQ implementation, relating to the tool, HCPs, adolescents, and the clinical context. The understanding of the barriers and facilitators to TRAQ use will support a structured implementation plan for TRAQ use in future clinical practice. Analysis revealed varying levels of readiness for transition to adult care services among patients and identified themes in their self-set goals, supporting the need for transition readiness supports in this population.

摘要

本研究旨在

1)在一个有限的临床样本中描述青少年癌症幸存者的过渡准备情况及自我报告的目标;2)调查医疗服务提供者(HCPs)对于在一家长期随访(LTFU)儿科肿瘤诊所由护士主导临床使用《过渡准备评估问卷》(TRAQ)及其后续停用的看法。数据收集自一家三级儿科医院的青少年幸存者(n = 7),同时对LTFU肿瘤诊所的HCPs(n = 3)进行了深入访谈。定性数据揭示了与该工具、HCPs、青少年及临床背景相关的TRAQ实施的障碍、促进因素及策略。对TRAQ使用的障碍和促进因素的理解将为未来临床实践中TRAQ的结构化实施计划提供支持。分析揭示了患者向成人护理服务过渡的准备程度各不相同,并确定了他们自我设定目标中的主题,支持了这一人群对过渡准备支持的需求。

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本文引用的文献

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Facilitators and Barriers to the Implementation of a Digital Pain Assessment Tool in Pediatric Oncology Practice: A Qualitative Evaluation of a Quality Improvement Project.促进和阻碍数字化疼痛评估工具在儿科肿瘤学实践中的实施:一项质量改进项目的定性评估。
J Pediatr Hematol Oncol Nurs. 2024 Jul;41(4):283-291. doi: 10.1177/27527530241242742. Epub 2024 Aug 14.
2
Transition Readiness Assessment Questionnaire: Skill gaps and psychosocial predictors of transition readiness among adolescents and young adults with chronic medical conditions.过渡准备评估问卷:慢性疾病青少年和年轻成年人的过渡准备技能差距和心理社会预测因素。
Child Care Health Dev. 2024 Jan;50(1):e13156. doi: 10.1111/cch.13156. Epub 2023 Aug 3.
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Qual Life Res. 2023 Aug;32(8):2305-2317. doi: 10.1007/s11136-023-03392-3. Epub 2023 Mar 23.
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Experience with the transition process of adolescents with chronic diseases from pediatric to adult care in a general hospital.综合医院青少年慢性病患者从儿科向成人护理过渡过程的经验。
Arch Argent Pediatr. 2022 Dec;120(6):398-404. doi: 10.5546/aap.2022.eng.398. Epub 2022 Oct 18.
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The updated Consolidated Framework for Implementation Research based on user feedback.基于用户反馈的更新的实施研究综合框架。
Implement Sci. 2022 Oct 29;17(1):75. doi: 10.1186/s13012-022-01245-0.
6
Childhood cancer survivorship care during the COVID-19 pandemic: an international report of practice implications and provider concerns.COVID-19 大流行期间的儿童癌症生存者护理:实践影响和提供者关注的国际报告。
J Cancer Surviv. 2022 Dec;16(6):1390-1400. doi: 10.1007/s11764-021-01120-9. Epub 2022 Jan 12.
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Barriers to long-term follow-up in adolescent and young adult survivors of childhood cancer: Perspectives from a low-middle income setting.儿童癌症青少年及青年幸存者长期随访的障碍:来自中低收入环境的观点
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"I have to do things differently now, but I make it work"-young childhood cancer survivors' experiences of self-management in everyday living.“我现在必须以不同的方式做事,但我让它发挥作用”- 儿童期癌症幸存者日常生活中的自我管理体验。
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