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数字健康素养与患有皮肤病合并症患者对数字健康伦理方面的态度相关。

Digital health literacy is linked to attitudes regarding the ethical aspects of digital health among patients with dermatologic comorbidities.

作者信息

Ruelas-Villavicencio Ana Lilia, Contreras-Yáñez Irazú, Gómez-Ruiz Roxana Paola, Zagaglia Del Valle María Clara, Malagón-Liceaga Andrea, Pascual-Ramos Virginia

机构信息

Centro Interdisciplinario de Bioética de la Universidad Panamericana (CIBUP), Mexico.

Department of Dermatology, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico.

出版信息

PLoS One. 2025 Sep 5;20(9):e0330916. doi: 10.1371/journal.pone.0330916. eCollection 2025.

Abstract

INTRODUCTION

Digital health literacy (DHL), also known as eHealth literacy, refers to an individual's ability to locate, understand, evaluate, and apply health information from electronic sources to make informed health decisions. This skill is increasingly regarded as essential for navigating the modern healthcare landscape, promoting health equity, and improving health outcomes. The study objective was to establish an association between DHL and dermatologic outpatients' attitudes regarding ethical aspects of digital health. Additionally, we validated a questionnaire designed to assess these bioethical attitudes.

PATIENTS AND METHODS

This cross-sectional study was performed in two phases (April 2024-December 2024). Phase-1 consisted of validating the Bioethical Attitudes toward Digital Health questionnaire (BADH). Phase-2 evaluated the association between the eHEALS (it assesses a person's ability to use digital health resources) and BADH scores. Three convenience samples of consecutive patients were used: S-1 included 46 patients who participated in a pilot testing, S-2 included 100 patients who participated in the BADH validation and S-3 included 120 patients and was used to investigate the association between DHL and bioethical attitudes. Descriptive statistics and multiple linear regression analysis were used.

RESULTS

The 8-item BADH was found to be feasible, valid, and reliable. The exploratory factor analysis revealed a two-factor structure, consisting of trust and privacy dimensions, which accounted for 59.8% of the total variance. This structure was subsequently validated through confirmatory factor analysis. The BADH reliability was confirmed with a Cronbach's alpha of 0.686 and ICC of 0.684 (95% CI: 0.581-0.770). A positive linear association was identified between the eHEALS and the BADH scores (β = 0.465, 95%CI: 0.218-0.450, p < 0.001). This relationship was evident with the trust dimension of the BADH (β = 0.526, 95%CI: 0.206-0.379, p < 0.001), but not with the privacy dimension.

CONCLUSIONS

DHL is associated with individual moral positions regarding digital health, particularly those concerning trust. The BADH questionnaire has adequate psychometric properties.

摘要

引言

数字健康素养(DHL),也称为电子健康素养,是指个人从电子来源查找、理解、评估和应用健康信息以做出明智健康决策的能力。这项技能越来越被视为在现代医疗环境中导航、促进健康公平和改善健康结果的关键。本研究的目的是确定数字健康素养与皮肤科门诊患者对数字健康伦理方面态度之间的关联。此外,我们验证了一份旨在评估这些生物伦理态度的问卷。

患者与方法

本横断面研究分两个阶段进行(2024年4月至2024年12月)。第一阶段包括验证数字健康生物伦理态度问卷(BADH)。第二阶段评估了eHEALS(评估个人使用数字健康资源的能力)与BADH得分之间的关联。使用了三个连续患者的便利样本:S-1包括46名参与预试验的患者,S-2包括100名参与BADH验证的患者,S-3包括120名患者,用于研究数字健康素养与生物伦理态度之间的关联。采用描述性统计和多元线性回归分析。

结果

发现8项BADH问卷可行、有效且可靠。探索性因素分析揭示了一个由信任和隐私维度组成的双因素结构,占总方差的59.8%。随后通过验证性因素分析对该结构进行了验证。BADH的信度通过Cronbach's alpha为0.686和ICC为0.684(95%CI:0.581-0.770)得到证实。eHEALS与BADH得分之间存在正线性关联(β = 0.465,95%CI:0.218-0.450,p < 0.001)。这种关系在BADH的信任维度中很明显(β = 0.526,95%CI:0. -- 0.379,p < 0.001),但在隐私维度中不明显。

结论

数字健康素养与个人对数字健康的道德立场相关,特别是那些与信任有关的立场。BADH问卷具有足够的心理测量特性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2ebd/12412967/99baa9daa464/pone.0330916.g001.jpg

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