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本文引用的文献

1
Comparison of Mobile Health Technology Use for Self-Tracking Between Older Adults and the General Adult Population in Canada: Cross-Sectional Survey.加拿大老年人与普通成年人群体使用移动健康技术进行自我追踪的比较:横断面调查。
JMIR Mhealth Uhealth. 2020 Nov 27;8(11):e24718. doi: 10.2196/24718.
2
Health-Related Quality of Life in Patients With Hodgkin Lymphoma: A Longitudinal Analysis of the German Hodgkin Study Group.霍奇金淋巴瘤患者的健康相关生活质量:德国霍奇金研究组的纵向分析。
J Clin Oncol. 2020 Sep 1;38(25):2839-2848. doi: 10.1200/JCO.19.03160. Epub 2020 Jun 23.
3
Mobile Devices and Health.移动设备与健康
N Engl J Med. 2019 Sep 5;381(10):956-968. doi: 10.1056/NEJMra1806949.
4
Cancer Survivorship.癌症幸存者关怀
N Engl J Med. 2018 Dec 20;379(25):2438-2450. doi: 10.1056/NEJMra1712502.
5
Cancer survivorship: an integral part of Europe's research agenda.癌症生存:欧洲研究议程的一个组成部分。
Mol Oncol. 2019 Mar;13(3):624-635. doi: 10.1002/1878-0261.12428. Epub 2019 Jan 8.
6
EHealth literacy in patients with cancer and their usage of web-based information.癌症患者的电子健康素养及其对网络信息的使用。
J Cancer Res Clin Oncol. 2018 Sep;144(9):1843-1850. doi: 10.1007/s00432-018-2703-8. Epub 2018 Jul 13.
7
Health literacy is associated with health behaviour and self-reported health: A large population-based study in individuals with cardiovascular disease.健康素养与健康行为和自我报告的健康状况有关:一项基于人群的心血管疾病患者大型研究。
Eur J Prev Cardiol. 2017 Nov;24(17):1880-1888. doi: 10.1177/2047487317729538. Epub 2017 Aug 31.
8
Using Smartphones and Health Apps to Change and Manage Health Behaviors: A Population-Based Survey.利用智能手机和健康应用程序改变和管理健康行为:一项基于人群的调查。
J Med Internet Res. 2017 Apr 5;19(4):e101. doi: 10.2196/jmir.6838.
9
Health literacy in the eHealth era: A systematic review of the literature.电子健康时代的健康素养:文献系统综述
Patient Educ Couns. 2017 Jun;100(6):1073-1082. doi: 10.1016/j.pec.2017.01.015. Epub 2017 Jan 28.
10
The impact of cancer survivorship care plans on patient and health care provider outcomes: a current perspective.癌症生存护理计划对患者及医疗服务提供者结局的影响:当前观点
Acta Oncol. 2017 Feb;56(2):134-138. doi: 10.1080/0284186X.2016.1266080. Epub 2017 Jan 13.

[癌症幸存者护理计划与自我管理]

[Cancer survivorship care programs and self-management].

作者信息

Esser Peter, Mehnert-Theuerkauf Anja

机构信息

Abteilung für Medizinische Psychologie und Medizinische Soziologie, Universität Leipzig, Philipp-Rosenthal-Straße 55, 04103 Leipzig, Deutschland.

出版信息

Onkologe (Berl). 2021;27(8):766-770. doi: 10.1007/s00761-021-00945-4. Epub 2021 Apr 23.

DOI:10.1007/s00761-021-00945-4
PMID:33935378
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8063579/
Abstract

BACKGROUND

Survivorship care programs (SCP) are increasingly being implemented in order to ensure long-term and comprehensive care of physical and psychosocial cancer-related sequelae among survivors. In this article, we provide a short overview of SCP and the importance of health-related self-management.

RESULTS

The broad definition of "survivorship" and the high diversity of impairments among cancer survivors warrants a personalized and multidimensional approach. This in turn requires both interdisciplinary and integrated care. To date, the state of knowledge on the efficacy of SCP is limited. A central aim of SCP is to increase health-related self-management, which in turn requires the ability to correctly evaluate and apply health-related information in order to resolve health-related problems (health literacy). Due to the technological developments, additional skills are needed to stay health literate (digital health literacy).

CONCLUSION

Further research on the efficacy of SCP is warranted. Both advantages and risks of digital health programs need to be carefully weighed to avoid inequalities in health care ("digital divide"). Specific education programs to improve digital health literacy may help to minimize such risks.

摘要

背景

为确保癌症幸存者长期、全面地护理身体和心理社会方面与癌症相关的后遗症,越来越多地实施幸存者护理计划(SCP)。在本文中,我们简要概述了SCP以及与健康相关的自我管理的重要性。

结果

“幸存者”的宽泛定义以及癌症幸存者中损伤的高度多样性需要一种个性化和多维度的方法。这反过来又需要跨学科和综合护理。迄今为止,关于SCP疗效的知识状况有限。SCP的一个核心目标是增强与健康相关的自我管理能力,这反过来又需要能够正确评估和应用与健康相关的信息以解决与健康相关的问题(健康素养)。由于技术发展,要保持健康素养还需要额外的技能(数字健康素养)。

结论

有必要对SCP的疗效进行进一步研究。需要仔细权衡数字健康计划的优点和风险,以避免医疗保健中的不平等(“数字鸿沟”)。提高数字健康素养的特定教育计划可能有助于将此类风险降至最低。