MacDonald L D, Anderson H R
J Epidemiol Community Health. 1984 Dec;38(4):284-90. doi: 10.1136/jech.38.4.284.
A self-rating measure of stigma and several supplementary questions were devised in order to assess perceived stigma in a community survey of the quality of life in 420 rectal cancer patients, of whom 265 had a permanent colostomy. Half the patients felt stigmatised, higher proportions being observed among younger patients and among those with a colostomy. Feelings of stigma were associated with poor health, particularly emotional disorders, with the presence of other medical problems, and with disablement. Patients who perceived stigma made more use of medical services but were less satisfied with them, particularly with regard to communication with health professionals. Socio-economic factors, such as employment status, higher income, and higher social and housing class, did not protect patients against feeling stigmatised by cancer or by colostomy. Most patients, with or without stigma, enjoyed close relationships with intimates, but the stigmatised were more likely to have withdrawn from participation in social activities. Assessing stigma by self-rating gives information which adds to that obtained by the usual methods of assessing quality of life.
设计了一种耻辱感自评量表和几个补充问题,以便在一项针对420名直肠癌患者生活质量的社区调查中评估感知到的耻辱感,其中265名患者有永久性结肠造口术。一半的患者感到受到了耻辱,在年轻患者和有结肠造口术的患者中观察到更高的比例。耻辱感与健康状况差有关,尤其是情绪障碍、其他医疗问题的存在以及残疾。感知到耻辱感的患者更多地使用医疗服务,但对这些服务的满意度较低,尤其是在与医护人员沟通方面。社会经济因素,如就业状况、较高收入以及较高的社会和住房阶层,并未使患者免受癌症或结肠造口术带来的耻辱感。大多数患者,无论有无耻辱感,都与亲密的人保持着密切关系,但有耻辱感的患者更有可能退出社会活动。通过自评评估耻辱感可提供信息,补充通过评估生活质量的常规方法所获得的信息。