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1
Stigma in patients with early epilepsy: a national longitudinal study.早期癫痫患者的耻辱感:一项全国性纵向研究。
J Epidemiol Community Health. 1984 Dec;38(4):291-5. doi: 10.1136/jech.38.4.291.
2
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Perceived stigma and associated factors among children and adolescents with epilepsy in south western Uganda: A cross sectional study.乌干达西南部癫痫患儿的感知污名及其相关因素:一项横断面研究。
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Epilepsy and its Impact on psychosocial outcomes in Canadian children: Data from the National Longitudinal Study of Children and Youth (NLSCY).癫痫及其对加拿大儿童心理社会结局的影响:来自全国儿童和青少年纵向研究(NLSCY)的数据。
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Stigma and functional disability in relation to marriage and employment in young people with epilepsy in rural Tanzania.坦桑尼亚农村地区癫痫青年的婚姻和就业与耻辱和功能障碍的关系。
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The "E" word: epilepsy and perceptions of unfair treatment from the 2010 Australian Epilepsy Longitudinal Survey.“E”字当头:2010 年澳大利亚癫痫纵向调查中癫痫与不公平待遇认知
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引用本文的文献

1
Epilepsy related mortality.癫痫相关死亡率。
Arch Dis Child. 2004 Aug;89(8):705-7. doi: 10.1136/adc.2003.036558.

本文引用的文献

1
Vocational and educational problems of epileptic patients.癫痫患者的职业与教育问题。
Epilepsia. 1972 Jan;13(1):149-60. doi: 10.1111/j.1528-1157.1972.tb04562.x.
2
Organic brain dysfunction and child psychiatric disorder.器质性脑功能障碍与儿童精神障碍。
Br Med J. 1968 Sep 21;3(5620):695-700. doi: 10.1136/bmj.3.5620.695.
3
Epilepsy and employment.癫痫与就业
Community Health (Bristol). 1976 Apr;7(4):195-204.
4
Childhood seizures: a 25-year follow up. Social and medical prognosis.儿童癫痫发作:25年随访。社会和医学预后。
Lancet. 1976 May 1;1(7966):948-51. doi: 10.1016/s0140-6736(76)92725-2.

早期癫痫患者的耻辱感:一项全国性纵向研究。

Stigma in patients with early epilepsy: a national longitudinal study.

作者信息

Britten N, Wadsworth M E, Fenwick P B

出版信息

J Epidemiol Community Health. 1984 Dec;38(4):291-5. doi: 10.1136/jech.38.4.291.

DOI:10.1136/jech.38.4.291
PMID:6512481
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1052371/
Abstract

Forty six cases of epilepsy were identified from the National Survey of Health and Development. An index of social visibility at school was constructed from teachers' reports of survey members' behaviour at 15 years of age. For the sample as a whole this index was significantly associated with poorer educational outcomes, after adjusting for social background and measured attainment, but was not associated with poor occupational achievement. However the index did not differentiate between epileptic and non-epileptic children. Although cases with epilepsy were shown to be more at risk of psychiatric disturbance, it is concluded that their lives were less disrupted than might have been expected, and that there is no evidence from this study that stigma affects the lives of those whose epilepsy was not complicated by other pathologies.

摘要

从全国健康与发展调查中识别出46例癫痫患者。根据教师对调查对象15岁时在校行为的报告构建了一个学校社交能见度指数。对于整个样本而言,在调整了社会背景和已测学业成绩后,该指数与较差的教育成果显著相关,但与较差的职业成就无关。然而,该指数并未区分癫痫儿童和非癫痫儿童。虽然癫痫患者被证明有更高的精神障碍风险,但得出的结论是,他们的生活受到的干扰比预期的要小,而且这项研究没有证据表明耻辱感会影响那些癫痫未并发其他病症的人的生活。