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早期癫痫患者的耻辱感:一项全国性纵向研究。

Stigma in patients with early epilepsy: a national longitudinal study.

作者信息

Britten N, Wadsworth M E, Fenwick P B

出版信息

J Epidemiol Community Health. 1984 Dec;38(4):291-5. doi: 10.1136/jech.38.4.291.

Abstract

Forty six cases of epilepsy were identified from the National Survey of Health and Development. An index of social visibility at school was constructed from teachers' reports of survey members' behaviour at 15 years of age. For the sample as a whole this index was significantly associated with poorer educational outcomes, after adjusting for social background and measured attainment, but was not associated with poor occupational achievement. However the index did not differentiate between epileptic and non-epileptic children. Although cases with epilepsy were shown to be more at risk of psychiatric disturbance, it is concluded that their lives were less disrupted than might have been expected, and that there is no evidence from this study that stigma affects the lives of those whose epilepsy was not complicated by other pathologies.

摘要

从全国健康与发展调查中识别出46例癫痫患者。根据教师对调查对象15岁时在校行为的报告构建了一个学校社交能见度指数。对于整个样本而言,在调整了社会背景和已测学业成绩后,该指数与较差的教育成果显著相关,但与较差的职业成就无关。然而,该指数并未区分癫痫儿童和非癫痫儿童。虽然癫痫患者被证明有更高的精神障碍风险,但得出的结论是,他们的生活受到的干扰比预期的要小,而且这项研究没有证据表明耻辱感会影响那些癫痫未并发其他病症的人的生活。

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本文引用的文献

1
Vocational and educational problems of epileptic patients.癫痫患者的职业与教育问题。
Epilepsia. 1972 Jan;13(1):149-60. doi: 10.1111/j.1528-1157.1972.tb04562.x.
3
Epilepsy and employment.癫痫与就业
Community Health (Bristol). 1976 Apr;7(4):195-204.
4
Childhood seizures: a 25-year follow up. Social and medical prognosis.
Lancet. 1976 May 1;1(7966):948-51. doi: 10.1016/s0140-6736(76)92725-2.

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