Lascari A D
J Fam Pract. 1978 Jun;6(6):1279-86.
The physician involved in the care of a child with a fatal disease has an obligation not only to give the best possible medical care to the child but also to provide emotional support and guidance for the family and the patient. Many emotional problems can be resolved or prevented by discussions with the parents and by encouraging them to express their anxieties and questions. The death of a child is the ultimate tragedy, and everything should be done to prevent further problems which add to the anguish the parents must endure. Support of the parents begins when the diagnosis is first presented, must be continued throughout the child's course, and should often extend beyond the death of the child. Understanding the child's reactions to death is important and helps the physician respond appropriately to the child's questions. Some older children wish to discuss their disease with the physician and in such cases their questions should be answered honestly, while at the same time offering hope.
参与照料患有致命疾病儿童的医生不仅有义务为孩子提供尽可能最好的医疗护理，还应为孩子的家庭和患者提供情感支持与指导。通过与家长讨论并鼓励他们表达焦虑和疑问，许多情感问题能够得到解决或预防。孩子的死亡是终极悲剧，应竭尽全力防止出现更多问题，以免增加家长必须承受的痛苦。对家长的支持从首次告知诊断结果时就应开始，在孩子整个病程中都要持续，而且通常应延伸至孩子去世之后。了解孩子对死亡的反应很重要，这有助于医生恰当地回应孩子的问题。一些年龄稍大的孩子希望与医生讨论他们的病情，在这种情况下，应诚实地回答他们的问题，同时给予希望。
