Zeltzer L, Kellerman J, Ellenberg L, Dash J, Rigler D
J Pediatr. 1980 Jul;97(1):132-8. doi: 10.1016/s0022-3476(80)80153-3.
Adolescent perceptions of the impact of illness were measured through the administration of an original questionnaire to 345 healthy adolescents and 168 adolescents with diabetes mellitus, cystic fibrosis, cancer, and cardiac, renal, or rheumatologic diseases. Total impact of illness (e.g., leukemia or colds) did not differ between ill and healthy respondents, and the nature of adolescent concerns were similar for both groups. Restriction of freedom was seen as the major disruption brought about by illness, with other areas of impact including relations with peers, siblings, and parents. Adolescents with cancer were most likely to view treatment as highly disruptive and, along with rheumatologic patients, expressed greatest disruption of body image secondary to disease and treatment. Perceived school disruption was most common in cardiac and oncologic patients, with the former also expressing a high degree of concern about sexuality. Females in all groups reported more impact of illness on physical appearance than did males; this difference was greatest in adolescents with cancer, rheumatologic diseases, and cystic fibrosis. The essentially healthy psychologic status of chronically ill adolescents is noted, as is the generally hopeful and positive quality of patient responses.
通过向345名健康青少年以及168名患有糖尿病、囊性纤维化、癌症以及心脏、肾脏或风湿性疾病的青少年发放一份原创问卷,来衡量青少年对疾病影响的认知。患病青少年与健康青少年对疾病总体影响(如白血病或感冒)的认知并无差异,且两组青少年所关注的问题性质相似。自由受限被视为疾病带来的主要干扰,其他受影响领域包括与同龄人、兄弟姐妹及父母的关系。癌症青少年最有可能认为治疗极具干扰性,并且与风湿性疾病患者一样,因疾病和治疗对身体形象的干扰最大。在心脏疾病和肿瘤疾病患者中,学业受干扰最为常见,前者对性方面也表现出高度关注。所有组中的女性都比男性报告称疾病对其外貌的影响更大;这种差异在患有癌症、风湿性疾病和囊性纤维化的青少年中最为明显。研究指出了慢性病青少年基本健康的心理状态,以及患者普遍充满希望和积极的回应态度。