Evans S E, Radford M
Department of Child Health, University of Southampton, Southampton General Hospital.
Arch Dis Child. 1995 May;72(5):423-6. doi: 10.1136/adc.72.5.423.
The aim of this study was to look at the current lifestyle of young adult survivors of childhood cancer between the ages of 16 and 30 years to document their achievements and expose any psychosocial problems. Sixty six young adult survivors were contacted and asked if they and their siblings (16-30 years) would take part in a lifestyle study; 48 patients and 38 sibling controls were interviewed. This took the form of a structured lifestyle questionnaire, a self esteem questionnaire (Oxford Psychologists Press), and an unstructured interview. Fifty five per cent of patients achieved five or more A-C grades at 'O' level/GCSE compared with 62% of siblings and a national average of 30%. Despite that these patients were significantly less likely to go on to higher education than their siblings. The two groups were equally employable and earning similar salaries. There were three cases of known employer prejudice. A slightly higher percentage of patients than siblings had their driving licence. Seventeen patients felt their appearance had changed and eight felt that they had a residual physical mobility problem. Both groups were socially active and equally likely to partake in competitive sports. There was no overall difference in the self esteem of the two groups. In general the survivors of childhood cancer were coping well in their young adult life and achieving the same lifestyle goals as their siblings. However, significant problems have been identified.
本研究的目的是观察年龄在16至30岁之间的儿童癌症成年幸存者的当前生活方式，记录他们取得的成就，并发现任何心理社会问题。我们联系了66名成年幸存者，询问他们及其兄弟姐妹（16 - 30岁）是否愿意参与一项生活方式研究；对48名患者和38名兄弟姐妹对照组进行了访谈。访谈采用结构化生活方式问卷、自尊问卷（牛津心理学家出版社）以及非结构化访谈的形式。55%的患者在普通中等教育证书考试（GCSE）的“O”级考试中取得了五个或更多A - C等级，相比之下，兄弟姐妹组的这一比例为62%，全国平均水平为30%。尽管如此，这些患者继续接受高等教育的可能性明显低于他们的兄弟姐妹。两组的就业能力相当，收入也相似。有三起已知的雇主偏见案例。拥有驾照的患者比例略高于兄弟姐妹组。17名患者感觉自己的外貌发生了变化，8名患者觉得自己存在身体活动能力方面的残留问题。两组在社交方面都很活跃，参与竞技运动的可能性相同。两组的自尊水平没有总体差异。总体而言，儿童癌症幸存者在成年生活中应对良好，实现了与他们兄弟姐妹相同的生活方式目标。然而，也发现了一些重大问题。
