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与慢性病共存:华裔加拿大和欧裔加拿大糖尿病女性——探索影响疾病管理的因素

Living with a chronic illness: Chinese-Canadian and Euro-Canadian women with diabetes--exploring factors that influence management.

作者信息

Anderson J M, Wiggins S, Rajwani R, Holbrook A, Blue C, Ng M

机构信息

School of Nursing, University of British Columbia, Vancouver, Canada.

出版信息

Soc Sci Med. 1995 Jul;41(2):181-95. doi: 10.1016/0277-9536(94)00324-m.

Abstract

The study reported on here was designed to address how Euro-Canadian and Chinese-Canadian women living with diabetes experience and manage their illness in their day to day lives, and the factors that influence daily management (diet, exercise, medication and blood testing). It was hypothesized that women's patterns of diabetes management would be associated with (a) ethnicity and/or (b) fluency in English. It was also hypothesized that the extent to which women with diabetes (whether Chinese- or Euro-Canadian, fluent or not fluent in English) would carry out daily management in accordance with western health care practices would be associated with: (i) the extent to which desired professional care is experienced; (ii) the women's awareness of facts as endorsed by health professionals (biomedical knowledge); and (iii) her satisfaction with the support received from family and friends. A total of 196 women were interviewed to explore these hypotheses. While we do not yet know the magnitude or relative importance of each of the independent variables, the findings from this study suggest that the management of diabetes is a complex construct, comprised of several components, each being influenced by a number of factors. How a woman managed her illness was not reducible to her ethnicity. Instead, the contextual features of her life, coupled with her ability to access resources seemed to organize the ways in which she managed her illness. Diabetes management therefore becomes a multifaceted phenomenon, which has to be understood within the mediating circumstances of a woman's life.

摘要

本文所报告的这项研究旨在探讨患有糖尿病的加拿大欧洲裔和华裔女性在日常生活中如何体验和管理自己的疾病,以及影响日常管理的因素(饮食、运动、药物治疗和血糖检测)。研究假设,女性糖尿病管理模式将与(a)种族和/或(b)英语流利程度相关。还假设,患有糖尿病的女性(无论是华裔还是加拿大欧洲裔,英语流利与否)按照西方医疗保健实践进行日常管理的程度将与以下因素相关:(i)所期望的专业护理体验程度;(ii)女性对健康专业人员认可的事实的认知(生物医学知识);以及(iii)她对从家人和朋友那里获得的支持的满意度。总共采访了196名女性以探究这些假设。虽然我们尚不知道每个自变量的大小或相对重要性,但这项研究的结果表明,糖尿病管理是一个复杂的概念,由几个部分组成,每个部分都受到多种因素的影响。女性如何管理自己的疾病不能简单归结于她的种族。相反,她生活的背景特征,加上她获取资源的能力,似乎决定了她管理疾病的方式。因此,糖尿病管理成为一个多方面的现象,必须在女性生活的中介环境中去理解。

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