Peters A V
Center for Functional Assessment Research, State University of New York, Buffalo 14214-3007.
Bull Med Libr Assoc. 1994 Apr;82(2):153-9.
A major challenge facing individuals with brain injury and the rehabilitation professionals who assist them is the acquisition of current, understandable information. Health professionals in hospitals usually provide initial information, which patients with brain injury and their families often find inadequate. They then find it necessary to seek information from independent sources. One such source, TBI-INFO, an information dissemination service, conducted a survey to determine how effectively it was satisfying consumer and professional demands. Responses generally indicated that the acquisition of information improved patients' integration into the community and enhanced their understanding of brain injury and its effects. Most of the information respondents received was new to them, most shared the information with others, and may requested information more than once. Half of the respondents changed their approach to a specific situation as a result of information they received. These results show that independent sources are capable of providing information that improves the perceived quality of life for individuals with traumatic brain injury.
脑损伤患者以及协助他们的康复专业人员面临的一个主要挑战是获取最新的、易懂的信息。医院的医疗专业人员通常会提供初步信息，但脑损伤患者及其家属往往觉得这些信息不够充分。于是，他们觉得有必要从独立来源寻求信息。其中一个来源，即信息传播服务机构TBI - INFO，进行了一项调查，以确定其满足消费者和专业人员需求的效果如何。调查结果普遍表明，获取信息有助于患者融入社区，并增强他们对脑损伤及其影响的理解。大多数受访者收到的信息对他们来说都是新的，大多数人会与他人分享这些信息，而且有些人不止一次地索要信息。一半的受访者因为所收到的信息而改变了应对特定情况的方法。这些结果表明，独立来源能够提供信息，从而改善创伤性脑损伤患者的生活质量认知。
