Sullivan M
Sektionen för vårdforskning, Sahlgrenska sjukhuset, Göteborg.
Lakartidningen. 1994 Mar 30;91(13):1340-1.
The generic measure, SF-36, was developed in the US. It covers both functioning and well-being and has proved suitable for clinical outcomes research, patient monitoring and health care planning. To protect the forms and scoring algorithms of the SF-36 and ensure comparability across studies and countries the copyright was placed with Medical Outcomes Trust, a non-profit making organization. Researchers are granted permission through a user agreement procedure. An international team of investigators is developing authorized translations of the SF-36 through the International Quality of Life Assessment (IQOLA) Project, sponsored by Glaxo Research Institute, Research Triangle Park, North Carolina, USA, and Schering-Plough Corporation, Kenilworth, New Jersey, USA. The Swedish test version is currently available on a case-by-case basis at the Health Care Research Unit. The tumor-specific measure, QLQ-C30, was developed and proved reliable in cross-cultural field studies, created by the Quality of Life Study Group within the European Organization for Research and Treatment of Cancer (EORTC). It includes questions on functioning, symptom burden and global quality of life across tumors, supplemented by diagnosis--or therapy-specific additional modules. The instrument is copyrighted and all translations are placed with the Quality of Life Unit at the EORTC Data Center, Brussels. Requests for permission to use the instrument and scoring instructions should be sent to the Center.
通用量表SF - 36是在美国开发的。它涵盖了功能和幸福感两个方面，已被证明适用于临床疗效研究、患者监测和医疗保健规划。为了保护SF - 36的表格和评分算法，并确保不同研究和国家之间具有可比性，其版权归非营利组织医疗结局信托所有。研究人员通过用户协议程序获得使用许可。一个国际研究团队正在通过国际生活质量评估（IQOLA）项目开发SF - 36的授权译本，该项目由美国北卡罗来纳州三角研究园的葛兰素研究所和美国新泽西州肯尼沃思的先灵葆雅公司赞助。瑞典测试版目前可在医疗保健研究单位逐案获取。肿瘤特异性量表QLQ - C30是由欧洲癌症研究与治疗组织（EORTC）内的生活质量研究小组开发的，并在跨文化实地研究中证明是可靠的。它包括关于各种肿瘤的功能、症状负担和总体生活质量的问题，并辅以诊断或治疗特异性的附加模块。该工具受版权保护，所有译本均归位于布鲁塞尔EORTC数据中心的生活质量部门所有。如需获得使用该工具及评分说明的许可，请将申请发送至该中心。
