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一种新的以患者为中心的指数,用于衡量严重持续性精神疾病患者的生活质量。

A new patient focused index for measuring quality of life in persons with severe and persistent mental illness.

作者信息

Becker M, Diamond R, Sainfort F

机构信息

Center for Health Systems Research and Analysis, University of Wisconsin-Madison 53705.

出版信息

Qual Life Res. 1993 Aug;2(4):239-51. doi: 10.1007/BF00434796.

DOI:10.1007/BF00434796
PMID:8220359
Abstract

The quality of life in persons with severe and persistent mental illness is often poor. Most treatment programmes have the goal of increasing quality of life. Unfortunately, existing methods to assess quality of life are cumbersome and oriented towards research rather than clinical settings. This study describes preliminary steps in the development, testing and application of a new patient focused index for measuring quality of life in persons with severe mental illness. The Quality of Life Index for Mental Health (QLI-MH) differs from existing instruments in that it is based on an easy to use, self-administered questionnaire that assesses nine separate domains that together encompass quality of life. Each domain can be individually weighted depending on its relative importance to the patient. Different parts of the instrument solicit information from the patient, the primary clinician, and, when available, the family. The instrument and its scoring system address limitations of previous approaches to quality of life measurement.

摘要

患有严重且持续性精神疾病的人的生活质量往往较差。大多数治疗方案的目标都是提高生活质量。不幸的是,现有的评估生活质量的方法既繁琐,又以研究而非临床环境为导向。本研究描述了一种新的以患者为中心的指数在开发、测试和应用过程中的初步步骤,该指数用于测量严重精神疾病患者的生活质量。心理健康生活质量指数(QLI-MH)与现有工具的不同之处在于,它基于一份易于使用的自我管理问卷,该问卷评估九个单独的领域,这些领域共同涵盖了生活质量。每个领域可根据其对患者的相对重要性进行单独加权。该工具的不同部分从患者、主治医生以及(如有)家属那里获取信息。该工具及其评分系统解决了以往生活质量测量方法的局限性。

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