George A, Hancock J
Department of Nursing, Hospital for Sick Children, Toronto, Ontario, Canada.
J Burn Care Rehabil. 1993 Jan-Feb;14(1):104-7. doi: 10.1097/00004630-199301000-00022.
We describe and evaluate the development and implementation of a parent participation program in the burn unit at The Hospital for Sick Children, Toronto, Ontario. The effect of parent participation on the multidisciplinary team member's role had to be taken into consideration, and effective, consistent education of the support for the multidisciplinary team had to be provided to ensure the success of the program. Unit-specific minimum standards of burn care were established as guides to support team members when they established the ground rules for the parents' participation. Education sessions were also held for staff to role-play problem-solving techniques. Including parents in the difficult daily treatments required changes in our admission procedures to maintain the family unit and to assess the parents' ability to provide emotional support for their child during the procedure. Early results of the program suggested that parental participation plays a major role in reducing a child's experience of pain during invasive procedures while allowing the family relationship to continue throughout all aspects of the hospitalization. The program also improved parents' coping strategies. The parents had a better understanding of the healing process and the need for specific measures, such as the use of compression garments, during the rehabilitation phase. This understanding may improve long-term compliance with treatment. Perceived difficulties with increased parental involvement were minimized through adequate education and preparation of the staff. Continued work is required, however, to objectively evaluate parent participation and its role in effectively reducing pain in the pediatric burn population.
我们描述并评估了安大略省多伦多市病童医院烧伤科一项家长参与计划的制定与实施情况。必须考虑家长参与对多学科团队成员角色的影响,并且要为多学科团队提供有效、一致的支持教育,以确保该计划的成功。制定了烧伤护理的科室特定最低标准,作为团队成员为家长参与制定基本规则时的指导。还为工作人员举办了教育课程,让他们进行解决问题技巧的角色扮演。让家长参与日常的困难治疗,需要改变我们的入院程序,以维持家庭单元,并评估家长在治疗过程中为孩子提供情感支持的能力。该计划的早期结果表明,家长参与在减少孩子侵入性治疗过程中的疼痛体验方面发挥着重要作用,同时能让家庭关系在住院的各个方面得以延续。该计划还改善了家长的应对策略。家长对康复过程以及康复阶段使用压力衣等具体措施的必要性有了更好的理解。这种理解可能会提高长期治疗依从性。通过对工作人员进行充分的教育和培训,将家长参与增加带来的感知困难降到了最低。然而,仍需要继续开展工作,以客观评估家长参与及其在有效减轻小儿烧伤患者疼痛方面的作用。