Hyland M E, Ley A, Fisher D W, Woodward V
Department of Psychology, University of Plymouth, UK.
Br J Clin Psychol. 1995 Nov;34(4):601-11. doi: 10.1111/j.2044-8260.1995.tb01494.x.
The Asthma Bother Profile assesses one of the components of asthma experience: asthma distress. An initial questionnaire was constructed from the content of earlier asthma quality of life research and modified by comments of 32 asthmatics in focus groups. Psychometric analysis of responses of 131 asthmatics to the final questionnaire showed that the 15 ¿bother items' constitute a unidimensional measure of asthma distress with high internal consistency, and the seven ¿management items' assess the patient's confidence of asthma knowledge, perception of the quality of care and confidence in managing asthma attacks. Patients who had attended a self-management clinic reported more knowledge of asthma, more bother from treatment but not significantly less bother in other contexts. Knowledge about when to call the doctor but not knowledge about medicine or asthma was correlated with total bother. Self-management programmes that encourage problem-focused coping strategies may not reduce asthma distress unless distress reduction counselling is included within the education programme.
哮喘困扰。最初的问卷是根据早期哮喘生活质量研究的内容构建的，并根据32名哮喘患者在焦点小组中的意见进行了修改。对131名哮喘患者对最终问卷的回答进行的心理测量分析表明，15个“困扰项目”构成了哮喘困扰的单维度测量，具有较高的内部一致性，7个“管理项目”评估患者对哮喘知识的信心、对护理质量的认知以及应对哮喘发作的信心。参加过自我管理诊所的患者报告了更多的哮喘知识、更多的治疗困扰，但在其他方面的困扰并没有显著减少。知道何时就医但不是关于药物或哮喘的知识与总困扰相关。鼓励以问题为中心的应对策略的自我管理项目可能不会减轻哮喘困扰，除非教育项目中包含减轻困扰的咨询。
