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一种新的个体生活质量简表(SEIQoL-DW):在一组艾滋病毒/艾滋病患者中的应用。

A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS.

作者信息

Hickey A M, Bury G, O'Boyle C A, Bradley F, O'Kelly F D, Shannon W

机构信息

Department of General Practice, University College Dublin, Coombe Healthcare Centre, Republic of Ireland.

出版信息

BMJ. 1996 Jul 6;313(7048):29-33. doi: 10.1136/bmj.313.7048.29.

DOI:10.1136/bmj.313.7048.29
PMID:8664768
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2351443/
Abstract

Quality of life is an increasingly important outcome measure in medicine and health care. Many measures of quality of life present patients with predetermined lists of questions that may or may not be relevant to the individual patient. This paper describes a brief measure, the SEIQoL-DW, which is derived from the schedule for evaluation of individual quality of life (SEIQoL). The measure allows respondents to nominate the areas of life which are most important, rate their level of functioning or satisfaction with each, and indicate the relative importance of each to their overall quality of life. Given its practicality and brevity, the measure should prove particularly useful in clinical situations where patient generated data on quality of life is important. This article describes the first clinical application of the measure, assessing the quality of life of a cohort of patients with HIV/AIDS managed in general practice.

摘要

生活质量在医学和医疗保健中是一项日益重要的结果衡量指标。许多生活质量衡量方法会向患者提供预先确定的问题清单,这些问题可能与个体患者相关,也可能不相关。本文介绍了一种简短的衡量方法,即疾病影响生活质量量表-直接加权法(SEIQoL-DW),它源自个体生活质量评估量表(SEIQoL)。该方法允许受访者提名对其最重要的生活领域,对每个领域的功能水平或满意度进行评分,并指出每个领域对其总体生活质量的相对重要性。鉴于其实用性和简短性,该方法在需要患者提供生活质量数据的临床情况下应会特别有用。本文描述了该方法的首次临床应用,即评估在全科医疗中管理的一组艾滋病毒/艾滋病患者的生活质量。

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Who should measure quality of life, the doctor or the patient?应该由谁来衡量生活质量,医生还是患者?
Br J Cancer. 1988 Jan;57(1):109-12. doi: 10.1038/bjc.1988.20.
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慢性中风后注意力缺陷治疗中皮质慢电位神经反馈的不确定结果。
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Evaluation of Individual Quality of Life (QOL) Among Patients with Tracheostomy Using WHO-QOL BREF Questionnaire.使用世界卫生组织生活质量简表(WHO-QOL BREF)对气管造口术患者的个体生活质量(QOL)进行评估。
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