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为妇科癌症患者及其家属提供的教育性团体支持。

Educational group support for patients with gynaecological cancer and their families.

作者信息

Carlsson M E, Strang P M

机构信息

Department of Gynaecological Oncology, University Hospital, Uppsala, Sweden.

出版信息

Support Care Cancer. 1996 Mar;4(2):102-9. doi: 10.1007/BF01845759.

Abstract

Prior to the start of a psychosocial project for patients with gynaecological cancer and their families, a questionnaire was mailed to evaluate their potential interest in an educational and supportive group. Another aim was to rank the most important issues. Group I consisted of patients with a newly diagnosed cancer and group II comprised patients who had been in clinical remission for 2-5 years; 173 questionnaires were sent. The response rate was 80%. The rates of interest in the proposed group sessions were 63% and 65% from patients and relatives in group I, and 52% and 36% from those in group II (P < 0.05). Younger individuals, couples and people with a higher formal education were generally more interested in participating (P < 0.05). The highest-ranked issues (mean 3.9-3.7 on a four-point scale) were cancer and cancer treatment, living with a cancer diagnosis, side-effects of treatment, cancer pain and psychological reactions to cancer. Among patients in group I, the interest in questions related to sexual activity was moderate (mean 2.8); the corresponding figure was significantly higher in group II (P < 0.05). Interest in supportive and educational groups was significantly higher than in comparable studies. Since relaxation programmes and issues concerning problems with relationships have been generally regarded as the most crucial topics in supportive programmes, the preference for specifically cancer-related issues was surprising. The study underlines the importance of specifically ascertaining which issues an intended group considers to be important.

摘要

在一项针对妇科癌症患者及其家属的社会心理项目启动之前,邮寄了一份问卷以评估他们对一个教育与支持小组的潜在兴趣。另一个目的是对最重要的问题进行排序。第一组由新诊断出癌症的患者组成,第二组由临床缓解2至5年的患者组成;共发放了173份问卷。回复率为80%。第一组患者和亲属对拟议小组会议的感兴趣率分别为63%和65%,第二组分别为52%和36%(P<0.05)。较年轻的个体、夫妻以及受正规教育程度较高的人通常对参与更感兴趣(P<0.05)。排名最高的问题(在四分制量表上平均为3.9 - 3.7)是癌症与癌症治疗、带着癌症诊断生活、治疗副作用、癌症疼痛以及对癌症的心理反应。在第一组患者中,对与性活动相关问题的兴趣为中等(平均2.8);第二组的相应数字显著更高(P<0.05)。对支持性和教育性小组的兴趣显著高于可比研究。由于放松计划以及与人际关系问题相关的议题通常被视为支持性项目中最关键的主题,所以对特定癌症相关问题的偏好令人惊讶。该研究强调了具体确定目标群体认为哪些问题重要的重要性。

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