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英格兰助产士及助产专业高年级学生对血红蛋白病的认知情况

Midwives' and senior student midwives' knowledge of haemaglobinopathies in England.

作者信息

Dyson S M, Fielder A V, Kirkham M J

出版信息

Midwifery. 1996 Mar;12(1):23-30. doi: 10.1016/s0266-6138(96)90035-2.

Abstract

OBJECTIVE

to examine midwives' and senior student midwives' knowledge concerning sickle-cell anaemia and beta-thalassaemia.

DESIGN

survey using the 'Dyson' questionnaires.

SETTING

study days on 26 sites across England over three months.

PARTICIPANTS

850 questionnaires were completed by a convenience sample of midwives and senior students: 401 on sickle-cell anaemia and 449 on beta-thalassaemia. In each case just under two-thirds were qualified midwives.

MEASUREMENTS AND FINDINGS

most respondents underestimated the number of ethnic groups affected by these disorders. A majority gave the wrong answers to basic questions on the inheritance of these disorder, fewer than one-third answered two simple genetics questions correctly.

KEY CONCLUSIONS

in order to provide an equitable service midwives need more education in this area, particularly after qualification. IMPLICATIONS FOR EDUCATION PRACTICE: education on haemoglobinopathies was linked with improved knowledge levels and appears most effective when undertaken by counsellors in haemoglobinopathies. Such education should therefore be available, especially to qualified midwives who had not previously received it.

摘要

目的

调查助产士及高级助产专业学生对镰状细胞贫血和β地中海贫血的了解情况。

设计

使用“戴森”问卷进行调查。

地点

在三个月内于英格兰各地26个地点开展研究日活动。

参与者

助产士和高级学生通过便利抽样完成了850份问卷:其中401份关于镰状细胞贫血,449份关于β地中海贫血。在每种情况下,有不到三分之二是合格的助产士。

测量与结果

大多数受访者低估了受这些疾病影响的种族群体数量。对于这些疾病遗传方面的基本问题,大多数人给出了错误答案,不到三分之一的人正确回答了两个简单的遗传学问题。

主要结论

为了提供公平的服务,助产士需要在这一领域接受更多教育,尤其是在取得资格之后。对教育实践的启示:关于血红蛋白病的教育与知识水平的提高相关,并且由血红蛋白病顾问进行时似乎最为有效。因此,应提供此类教育,特别是给以前未接受过此类教育的合格助产士。

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