Merrouche Y, Freyer G, Saltel P, Rebattu P
Medical Oncology Department, Centre Léon Bérard, Lyon, France.
Support Care Cancer. 1996 May;4(3):163-8. doi: 10.1007/BF01682335.
The aim of this study was to evaluate the quality of care for terminal cancer patients at our institution, as assessed by families in a questionnaire sent 6 months after the death of the patient. We evaluated the quality of information given to the patients and to their families, the patients' "comfort" at the end of their lives (nursing, pain, psychological support) and the families' opinions about the practical conditions at the time of death (in our institution or at home). A total of 105 consecutive patients who died in our institution between January and June 1989 were included in the study; the vast majority had breast or head and neck cancers. We obtained a total of 48 answers from the 105 families that received the questionnaire. Of these, 87.5% were satisfied with the terminal nursing care, 77% were satisfied with the information given to patients and 60% with the information given to families. The treatment for pain was considered to be inefficient or incomplete by 21% of the families; 32 families (67%) considered that the death of terminal cancer patients should occur in the hospital where the patient had been treated and 12% felt that it should occur at home. This study led us to examine various means for improving the quality of care for our terminal cancer patients.
本研究的目的是通过在患者去世6个月后向其家属发放问卷进行评估，来评价我们机构对晚期癌症患者的护理质量。我们评估了向患者及其家属提供的信息质量、患者临终时的“舒适度”（护理、疼痛、心理支持）以及家属对死亡时实际情况（在我们机构或在家中）的看法。1989年1月至6月期间在我们机构死亡的105例连续患者纳入了本研究；绝大多数患者患有乳腺癌或头颈癌。我们从105个收到问卷的家庭中总共获得了48份回复。其中，87.5%的家属对临终护理感到满意，77%的家属对向患者提供的信息感到满意，60%的家属对向家属提供的信息感到满意。21%的家属认为疼痛治疗无效或不彻底；32个家庭（67%）认为晚期癌症患者应在接受治疗的医院去世，12%的家属认为应在家中去世。这项研究促使我们审视各种提高晚期癌症患者护理质量的方法。
