Feenberg A L, Licht J M, Kane K P, Moran K, Smith R A
Center for Neurologaic Study, San Diego, CA 92121, USA.
J Neurol Sci. 1996 Aug;139 Suppl:129-31. doi: 10.1016/0022-510x(96)00093-7.
Studies have shown the importance of social support for health, and the value of patient support groups. Today we are seeing a further development of the idea of the patient meeting: online discussions on the internet and other computer networks. This paper reports on the online activities of patients with amyotrophic lateral sclerosis. The paper explores key questions in the evaluation of online patient meetings, such as the ability of patients to discuss their problems frankly, the availability and accuracy of advice, the spread and control of rumours.
研究表明了社会支持对健康的重要性以及患者支持小组的价值。如今，我们看到患者聚会这一理念有了进一步发展：在互联网和其他计算机网络上进行在线讨论。本文报告了肌萎缩侧索硬化症患者的在线活动。本文探讨了评估在线患者聚会中的关键问题，例如患者坦率讨论自身问题的能力、建议的可得性和准确性、谣言的传播与控制。
