遗传性疾病情况下骨髓移植的家长同意书。
Parental consent for bone marrow transplantation in the case of genetic disorders.
作者信息
Prows C A, McCain G C
机构信息
Division of Human Genetics, Children's Hospital Medical Center, Cincinnati, OH, USA.
出版信息
J Soc Pediatr Nurs. 1997 Jan-Mar;2(1):9-18; quiz 19-20. doi: 10.1111/j.1744-6155.1997.tb00194.x.
PURPOSE
To describe the responses of mothers and fathers who were offered bone marrow transplantation (BMT) for their children with genetic disorders.
DESIGN
Qualitative.
SETTING
Private hospital rooms/offices.
PARTICIPANTS
Six mothers and 4 fathers of children with genetic disorders.
RESULTS
The basic social-psychological problem confronting the parents was the conflicting alternatives of life versus death for their children. It was certain that these children would die from their genetic disorders but without having to endure the pain and suffering of a BMT. The BMT would be difficult, possibly resulting in death, but with a chance of survival.
CONCLUSIONS
Parents believed that BMT was the only chance of survival for their children, leaving them no choice except to pursue the BMT treatment.
目的
描述那些其患有遗传性疾病的孩子被建议进行骨髓移植（BMT）的父母的反应。
设计
定性研究。
地点
私立医院病房/办公室。
参与者
六名患有遗传性疾病孩子的母亲和四名父亲。
结果
父母面临的基本社会心理问题是孩子生与死的两难抉择。确定的是，这些孩子会死于遗传性疾病，但无需忍受骨髓移植的痛苦。骨髓移植过程艰难，可能导致死亡，但有存活的机会。
结论
父母认为骨髓移植是孩子唯一的生存机会，这使他们别无选择，只能寻求骨髓移植治疗。
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