Riemsma R P, Klein G, Taal E, Rasker J J, Houtman P M, van Paassen H C, Wiegman O
Department of Psychology, University of Twente, Enschede, The Netherlands.
Scand J Rheumatol. 1998;27(1):7-15. doi: 10.1080/030097498441119.
The objective of this study is to determine supply of, and demand for, informal care for rheumatoid arthritis (RA) patients and to evaluate the factors that contribute to the amounts of help needed and received from professional and informal care providers at home. Data were collected by questionnaire from 229 RA patients and 174 informal caregivers. Most of the help required is also received, though 24% of the patients did not receive help for one or more tasks. Most help given at home is by informal caregivers. The amount of help needed is related primarily to the patient's physical condition, sex, and self-efficacy expectations towards coping with RA. The amount of help received from informal caregivers is largely explained by the physical condition and the marital status of the patient, the sex of the caregiver, the patient's self-efficacy expectations towards coping with RA, and the age of the patient. The amount of help received from health professionals is related primarily to the marital status and the physical condition of the patient.
本研究的目的是确定类风湿性关节炎（RA）患者的非正式护理供给与需求，并评估促使患者在家中从专业护理人员和非正式护理人员那里获得所需帮助量的因素。通过问卷调查收集了229名RA患者和174名非正式护理人员的数据。大部分所需帮助也得到了提供，不过24%的患者在一项或多项任务上未得到帮助。家中提供的大部分帮助来自非正式护理人员。所需帮助量主要与患者的身体状况、性别以及应对RA的自我效能期望有关。从非正式护理人员那里获得的帮助量很大程度上可由患者的身体状况、婚姻状况、护理人员的性别、患者应对RA的自我效能期望以及患者的年龄来解释。从健康专业人员那里获得的帮助量主要与患者的婚姻状况和身体状况有关。
