Nordeson A, Engström B, Norberg A
Department of Advanced Nursing, Umeå University, Sweden.
Qual Life Res. 1998 Apr;7(3):257-66. doi: 10.1023/a:1024950417332.
Progressive neurological diseases influence the life situation of patients either totally or partially. Such patients' own ratings of their life situation and well-being were made using a health-related quality of life HRQoL instrument called Quality of Life: status and change (QLsc). In general the interviewees rated their life domains in terms of positive response alternatives and no subgroups were found, e.g. with the same diagnoses, periods of sickness or age. The results suggest that the interviewees' experience of quality of life (QoL) is subjective and individual. The interviewees who had been to the rehabilitation centre several times rated their quality of life, in terms of positive response alternatives for the items covering overall experiences of bodily health, well-being and their whole life as well as for items in the social domain, to a greater extent than those who were visiting it for the first time.
进行性神经疾病会完全或部分地影响患者的生活状况。此类患者对自身生活状况和幸福感的评估是使用一种名为“生活质量：现状与变化”（QLsc）的与健康相关的生活质量（HRQoL）工具进行的。总体而言，受访者根据积极的回答选项对其生活领域进行了评分，未发现亚组差异，例如具有相同诊断、患病时间或年龄的亚组。结果表明，受访者的生活质量（QoL）体验是主观且因人而异的。多次去过康复中心的受访者在涉及身体健康、幸福感和整个生活的总体体验以及社会领域项目的积极回答选项方面，对生活质量的评分比首次前往康复中心的受访者更高。
