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评估辅助设备及工作方式改变对类风湿关节炎女性患者影响的调查问卷。

Questionnaire to evaluate the effects of assistive devices and altered working methods in women with rheumatoid arthritis.

作者信息

Nordenskiöld U, Grimby G, Dahlin-Ivanoff S

机构信息

Department of Rehabilitation Medicine, Sahlgrenska University Hospital, Göteborg, Sweden.

出版信息

Clin Rheumatol. 1998;17(1):6-16. doi: 10.1007/BF01450952.

DOI:10.1007/BF01450952
PMID:9586673
Abstract

The objectives of the study were to identify perceived difficulty and reduction of difficulty when using assistive devices and altered working methods in performing daily activities and to detect which activities were unaffected by interventions. Twenty-one women aged 29-65 years with rheumatoid arthritis answered the Evaluation of Daily Activity Questionnaire (EDAQ), which contains 102 items divided into 11 dimensions of daily activities. The women rated their perceived difficulty twice: first when not using devices or altered methods and then when using them. The use of devices or altered methods led to a reduction in perceived difficulty in 42% of the ratings. The number of items that the women found difficult when not using devices/altered methods ranged between 13 and 99. With the interventions, the number of items still found difficult decreased to between 6 and 57, 91% of the devices provided were still in use. The dimensions Eating, Cooking and Toileting contained the most items affected by the use of devices such as lever taps, springy scissors, breadknife and wrist orthosis. Few effective devices were identified for the dimensions Dressing, Washing, Cleaning and Mobility Outdoors. It was concluded that the EDAQ represents a new approach to demonstrating difficulties in performing various daily activities, to describing the effects of assistive devices/altered methods, and to identifying areas not affected by interventions.

摘要

该研究的目的是确定在进行日常活动时使用辅助设备和改变工作方法时所感知到的困难以及困难的减少情况,并检测哪些活动不受干预措施的影响。21名年龄在29至65岁之间的类风湿性关节炎女性回答了日常活动问卷(EDAQ),该问卷包含102个项目,分为11个日常活动维度。这些女性对她们感知到的困难进行了两次评分:第一次是在不使用设备或未改变方法时,第二次是在使用设备或改变方法时。在42%的评分中,使用设备或改变方法导致感知到的困难有所减少。这些女性在不使用设备/改变方法时觉得困难的项目数量在13至99之间。通过干预措施,仍然觉得困难的项目数量减少到了6至57之间,所提供的设备中有91%仍在使用。饮食、烹饪和如厕维度包含受杠杆水龙头、弹性剪刀、面包刀和手腕矫形器等设备使用影响的项目最多。在穿衣、洗漱、清洁和户外出行维度中,几乎没有发现有效的设备。得出的结论是,EDAQ代表了一种新的方法,可用于展示进行各种日常活动时的困难、描述辅助设备/改变方法的效果以及识别不受干预措施影响的领域。

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