Morse S R, Fife B
Indiana University School of Nursing Center for Nursing Research, Indianapolis, USA.
Oncol Nurs Forum. 1998 May;25(4):751-60.
PURPOSE/OBJECTIVES: To study the psychosocial adjustment of partners/spouses of patients with cancer at four specific stages of the illness trajectory time of diagnosis, period of first remission, first recurrence, and period of metastatic disease.
A cross-sectional, descriptive survey.
A university cancer center, a private cancer clinic, and a clinic in a large city serving people who are uninsured and unable to pay for their treatment.
175 partners of patients who were in one of four specific stages of the illness trajectory participated in this study, Various types of cancer were represented. Seventy-seven participants were men, and 98 were women; their mean age was 49 years.
A survey questionnaire was used to collect data on psychosocial adjustment, specific sources of social support, dyadic adjustment, coping strategies, emotional response, cognitive response, and personal control.
Results indicate that partners of patients who were experiencing a recurrence of their illness or who were in the metastatic stage of the disease were more vulnerable to increased distress and problems of adjustment. Women also reported higher levels of distress than men. Variables that had the most significant direct affect on adjustment were emotional response, cognitive response, family support, and partner cohesion. Coping strategies influenced emotion and cognition.
Caring for partners is essential to promoting quality of life for the patient and the family.
Assessment, providing an opportunity to express concerns, and referral for psychosocial intervention as necessary are important to promote the highest possible quality of life for partners and patients.
目的/目标:研究癌症患者的伴侣/配偶在疾病轨迹的四个特定阶段(诊断时、首次缓解期、首次复发期和转移性疾病期)的心理社会适应情况。
横断面描述性调查。
一所大学癌症中心、一家私立癌症诊所,以及大城市中一家为未参保且无力支付治疗费用的人群服务的诊所。
175名处于疾病轨迹四个特定阶段之一的患者的伴侣参与了本研究,涵盖了各种类型的癌症。77名参与者为男性,98名参与者为女性;他们的平均年龄为49岁。
使用调查问卷收集有关心理社会适应、社会支持的具体来源、二元调整、应对策略、情绪反应、认知反应和个人控制的数据。
结果表明,经历疾病复发或处于疾病转移性阶段的患者的伴侣更容易出现痛苦加剧和适应问题。女性报告的痛苦程度也高于男性。对适应有最显著直接影响的变量是情绪反应、认知反应、家庭支持和伴侣凝聚力。应对策略影响情绪和认知。
关爱伴侣对于提高患者及其家庭的生活质量至关重要。
进行评估、提供表达担忧的机会以及必要时转介进行心理社会干预,对于提高伴侣和患者的生活质量至关重要。