Knudsen L B, Olsen J
Danish Epidemiology Science Centre, University of Aarhus.
Dan Med Bull. 1998 Jun;45(3):320-3.
The Danish Medical Birth Registry (MBR) was established in 1968 and has been computerized since 1973. The primary purpose of the registration is to monitor the health of the newborns and of the quality of the antenatal and delivery care services, but the registry is increasingly being used in research. Major changes in registration have taken place in 1978 and 1991. The paper describes the content and usage of the MBR over time and suggests research topics for the future.
A broad scope of studies illustrates how the MBR has been used, either as single data source, linked with data from other registries or with data from interviews or self-completed questionnaires. Validations have shown variations in the quality of data, depending on source, and have underlined the need for constant quality control. Any access to data at the individual level is subjected to special provisions laid down by the Data Surveillance Authority and also requires a permission from the National Board of Health.
The time from conception to early childhood is an important period concerning future health for the individual. The Danish Medical Birth Registry is a valuable tool in this respect, which has not yet been used to its full potential in research or monitoring. Experience indicates that the quality of the registry depends upon having a close link to the staff responsible for delivery services and thus having the necessary specialised skills and interest.
丹麦医学出生登记处（MBR）成立于1968年，自1973年起实现了计算机化。登记的主要目的是监测新生儿的健康状况以及产前和分娩护理服务的质量，但该登记处越来越多地被用于研究。1978年和1991年登记发生了重大变化。本文描述了MBR随时间的内容和使用情况，并提出了未来的研究课题。
广泛的研究表明了MBR是如何被使用的，它既可以作为单一数据源，与其他登记处的数据相链接，也可以与访谈数据或自我填写的问卷数据相链接。验证表明，数据质量因来源而异，并强调了持续质量控制的必要性。任何对个人层面数据的访问都要遵循数据监督机构制定的特殊规定，并且还需要获得国家卫生局的许可。
从受孕到幼儿期这段时间对于个人未来的健康来说是一个重要时期。丹麦医学出生登记处在这方面是一个有价值的工具，但其在研究或监测中的潜力尚未得到充分发挥。经验表明，登记处的质量取决于与负责分娩服务的工作人员保持密切联系，从而拥有必要的专业技能和兴趣。
