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唐氏综合征患儿及其兄弟姐妹、非智障和其他智障同龄人中的日间行为问题与母亲压力

Daytime behaviour problems and maternal stress in children with Down's syndrome, their siblings, and non-intellectually disabled and other intellectually disabled peers.

作者信息

Stores R, Stores G, Fellows B, Buckley S

机构信息

Department of Psychology, University of Portsmouth, England.

出版信息

J Intellect Disabil Res. 1998 Jun;42 ( Pt 3):228-37. doi: 10.1046/j.1365-2788.1998.00123.x.

Abstract

The present study investigates the occurrence of daytime behaviour problems and maternal stress in a group of children with Down's syndrome (DS) compared with a group of their non-intellectually disabled siblings, a group of non-intellectually disabled children from the general population and a group of children with an intellectual disability other than Down's syndrome. The Aberrant Behavior Checklist (ABC) and the Malaise Inventory were completed by the mothers. Associations between daytime behaviour problems and maternal stress were also explored. Overall, the children with DS and the children with other intellectual disabilities showed significantly higher rates of behavioural disturbance on all five of the ABC subscales (Irritability, Lethargy, Stereotypies, Hyperactivity and Inappropriate Speech) and on the Total ABC score. However, the children with other intellectual disabilities also showed significantly higher scores than the children with DS on four of the ABC subscales: Irritability, Lethargy, Stereotypies and Hyperactivity, as well as the Total ABC score. The siblings and children from the general population showed very similar behaviour scores. A number of significant age and sex differences were found in the occurrence of daytime behaviour problems. Maternal stress was significantly higher in the group with other forms of intellectual disability than the other three groups, and a number of significant associations were found between parental ratings of daytime behaviour problems and maternal stress in all four samples. The implications of the findings are discussed, including the need for early assessment to minimize adverse effects on the child's development and on family life.

摘要

本研究调查了一组唐氏综合征(DS)患儿与他们的非智力残疾兄弟姐妹、一组来自普通人群的非智力残疾儿童以及一组除唐氏综合征外的智力残疾儿童相比,日间行为问题和母亲压力的发生情况。母亲们完成了异常行为检查表(ABC)和不适清单。还探讨了日间行为问题与母亲压力之间的关联。总体而言,DS患儿和其他智力残疾患儿在ABC量表的所有五个分量表(易激惹、嗜睡、刻板行为、多动和不当言语)以及ABC总分上的行为障碍发生率显著更高。然而,在ABC量表的四个分量表(易激惹、嗜睡、刻板行为和多动)以及ABC总分上,其他智力残疾患儿的得分也显著高于DS患儿。兄弟姐妹和来自普通人群的儿童表现出非常相似的行为得分。在日间行为问题的发生上发现了一些显著的年龄和性别差异。其他形式智力残疾组的母亲压力显著高于其他三组,并且在所有四个样本中,父母对日间行为问题的评分与母亲压力之间发现了一些显著关联。讨论了研究结果的意义,包括早期评估的必要性,以尽量减少对儿童发育和家庭生活的不利影响。

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