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耶和华见证人的拒血行为的生物伦理学:第二部分。基于理性非干预家长主义的新方法。

Bioethics of the refusal of blood by Jehovah's Witnesses: Part 2. A novel approach based on rational non-interventional paternalism.

作者信息

Muramoto O

机构信息

Kaiser Permanente Northwest Division, Oregon, USA.

出版信息

J Med Ethics. 1998 Oct;24(5):295-301. doi: 10.1136/jme.24.5.295.

DOI:10.1136/jme.24.5.295
PMID:9800583
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1377601/
Abstract

Most physicians dealing with Jehovah's Witnesses (JWs) who refuse blood-based treatment are uncertain as to any obligation to educate patients where it concerns the JW blood doctrine itself. They often feel they must unquestioningly comply when demands are framed as religiously based. Recent discussion by dissidents and reformers of morally questionable policies by the JW organisation raise ethical dilemmas about "passive" support of this doctrine by some concerned physicians. In this paper, Part 2, I propose that physicians discuss the misinformation and irrationality behind the blood doctrine with the JW patient by raising questions that provide new perspectives. A meeting should be held non-coercively and in strict confidence, and the patient's decision after the meeting should be fully honoured (non-interventional). A rational deliberation based on new information and a new perspective would enable a certain segment of JW patients to make truly informed, autonomous and rational decisions.

摘要

大多数治疗拒绝接受基于血液治疗的耶和华见证人的医生,对于在涉及耶和华见证人的血液教义本身时是否有义务对患者进行教育并不确定。当要求是以宗教为依据提出时,他们常常觉得必须毫无疑问地遵从。耶和华见证人组织中持不同意见者和改革者最近对道德上有问题的政策进行的讨论,引发了一些相关医生对该教义“被动”支持的伦理困境。在本文的第二部分,我提议医生通过提出能提供新视角的问题,与耶和华见证人患者讨论血液教义背后的错误信息和不合理之处。会议应以非强制性且严格保密的方式举行,会议后患者的决定应得到充分尊重(不干预)。基于新信息和新视角进行理性思考,将使一部分耶和华见证人患者能够做出真正明智、自主且理性的决定。

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Bioethics of the refusal of blood by Jehovah's Witnesses: Part 2. A novel approach based on rational non-interventional paternalism.耶和华见证人的拒血行为的生物伦理学:第二部分。基于理性非干预家长主义的新方法。
J Med Ethics. 1998 Oct;24(5):295-301. doi: 10.1136/jme.24.5.295.
2
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Reflections on Cultural Preferences and Internal Medicine: The Case of Jehovah's Witnesses and the Changing Thresholds for Blood Transfusions.关于文化偏好与内科医学的思考:耶和华见证人的案例以及输血阈值的变化
J Relig Health. 2017 Apr;56(2):732-738. doi: 10.1007/s10943-016-0353-1.
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Contending medical decision models.相互竞争的医学决策模型。
Theor Med Bioeth. 2001 Jun;22(3):193-210. doi: 10.1023/a:1011402814210.
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Why some Jehovah's Witnesses accept blood and conscientiously reject official Watchtower Society blood policy.为何一些耶和华见证人接受输血,却又刻意拒绝守望台圣经书社的官方输血政策。
J Med Ethics. 2000 Oct;26(5):375-80. doi: 10.1136/jme.26.5.375.
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Bioethics of the refusal of blood by Jehovah's Witnesses: Part 3. A proposal for a don't-ask-don't-tell policy.耶和华见证人的拒输血生物伦理学:第三部分。关于“不问不说”政策的提议。
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Recent developments in medical care of Jehovah's Witnesses.耶和华见证人的医疗护理近期进展。
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J Med Ethics. 1998 Dec;24(6):376-81. doi: 10.1136/jme.24.6.376.

本文引用的文献

1
Bioethics of the refusal of blood by Jehovah's Witnesses: Part 1. Should bioethical deliberation consider dissidents' views?耶和华见证人的拒输血行为的生物伦理学:第一部分。生物伦理学考量应纳入异议者的观点吗?
J Med Ethics. 1998 Aug;24(4):223-30. doi: 10.1136/jme.24.4.223.
2
Should informed consent be based on rational beliefs?知情同意应该基于理性信念吗?
J Med Ethics. 1997 Oct;23(5):282-8. doi: 10.1136/jme.23.5.282.
3
What went wrong: multiple perspectives on an adolescent's decision to refuse blood transfusions.出了什么问题:关于一名青少年拒绝输血决定的多种观点
Clin Pediatr (Phila). 1996 Jun;35(6):317-21. doi: 10.1177/000992289603500605.
4
Rational non-interventional paternalism: why doctors ought to make judgments of what is best for their patients.合理的非干涉性家长主义:为何医生应该对什么对患者最有利做出判断。
J Med Ethics. 1995 Dec;21(6):327-31. doi: 10.1136/jme.21.6.327.
5
Religious freedom and forced transfusion of Jehovah's Witness children.宗教自由与耶和华见证会儿童的强制输血
J Emerg Med. 1996 Mar-Apr;14(2):241-2. doi: 10.1016/0736-4679(95)02095-0.
6
Caring for the female Jehovah's Witness: balancing medicine, ethics, and the First Amendment.
Am J Obstet Gynecol. 1994 Feb;170(2):452-5. doi: 10.1016/s0002-9378(94)70210-1.
7
Written advance directives refusing blood transfusion: ethical and legal considerations.拒绝输血的书面预先医疗指示:伦理与法律考量
Am J Med. 1994 Jun;96(6):563-7. doi: 10.1016/0002-9343(94)90098-1.
8
Managing a Jehovah's Witness who agrees to blood transfusion.对一名同意输血的耶和华见证会信徒进行管理。
BMJ. 1994 Sep 3;309(6954):612. doi: 10.1136/bmj.309.6954.612b.
9
Blood transfusion in adult Jehovah's Witnesses. A case study of one congregation.成年耶和华见证人的输血问题。一个教众群体的案例研究。
Arch Intern Med. 1982 Mar;142(3):606-7.
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Jehovah's Witnesses and autologous transfusion.耶和华见证人与自体输血。
Transfusion. 1985 Mar-Apr;25(2):179. doi: 10.1046/j.1537-2995.1985.25285169218.x.