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镰状细胞综合征患儿照料者适应过程中的家庭功能与社会支持

Family functioning and social support in the adaptation of caregivers of children with sickle cell syndromes.

作者信息

Ievers C E, Brown R T, Lambert R G, Hsu L, Eckman J R

机构信息

Emory University School of Medicine, USA.

出版信息

J Pediatr Psychol. 1998 Dec;23(6):377-88. doi: 10.1093/jpepsy/23.6.377.

DOI:10.1093/jpepsy/23.6.377
PMID:9824926
Abstract

OBJECTIVE

To examine moderating effects of family functioning and social support on the relationship of child-related stressors to caregivers' psychological adaptation in a sample of caregivers of children with a chronic illness.

METHOD

Participants were 67 caregivers of children and adolescents with sickle cell syndromes. We conducted MANOVAs and subsequent effect size calculations to determine if family functioning would buffer the effects of caring for difficult-to-manage children with this illness.

RESULTS

Findings supported a moderator effect of family functioning on the association of children's externalizing behavioral problems to caregivers' symptoms of hostility. Greater levels of cohesive and adaptive family functioning buffered the potential detrimental effects of caring for children perceived as hard to manage. No significant associations were obtained between measures of caregivers' psychological adaptation and the severity of their children's disease.

CONCLUSIONS

We make recommendations for family systems interventions, particularly for caregivers of children with behavior problems.

摘要

目的

在慢性病患儿照料者样本中,检验家庭功能和社会支持对与儿童相关的压力源和照料者心理适应之间关系的调节作用。

方法

参与者为67名患有镰状细胞综合征的儿童和青少年的照料者。我们进行了多变量方差分析及后续效应量计算,以确定家庭功能是否会缓冲照料患有该疾病且难以管理的儿童所产生的影响。

结果

研究结果支持家庭功能对儿童外化行为问题与照料者敌意症状之间关联的调节作用。更高水平的凝聚力和适应性家庭功能缓冲了照料被视为难以管理的儿童可能产生的有害影响。在照料者心理适应指标与其子女疾病严重程度之间未获得显著关联。

结论

我们针对家庭系统干预提出建议,特别是针对有行为问题儿童的照料者。

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