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协助身患癌症的绝症儿童指南:国际小儿肿瘤学会心理社会问题工作委员会报告

Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology.

作者信息

Masera G, Spinetta J J, Jankovic M, Ablin A R, D'Angio G J, Van Dongen-Melman J, Eden T, Martins A G, Mulhern R K, Oppenheim D, Topf R, Chesler M A

机构信息

Clinica Pediatrica dell'Università di Milano, Ospedale S. Gerardo, Monza, Italy.

出版信息

Med Pediatr Oncol. 1999 Jan;32(1):44-8. doi: 10.1002/(sici)1096-911x(199901)32:1<44::aid-mpo9>3.0.co;2-p.

Abstract

This, the sixth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, develops another important and especially difficult topic: assistance for terminally ill children with cancer. This is provided for the pediatric oncology community as a useful set of guidelines. It should be always possible for a declining child to die without unnecessary physical pain, fear, or anxiety. It is essential that he or she receive adequate medical, spiritual, and psychological support, and that the child at no point feels abandoned. Palliative care, in the terminal phase of cancer, should be tailored to the different needs and desires of the child and the family, with the goal of providing the best possible quality of life for the days that remain.

摘要

这是国际小儿肿瘤学会心理社会问题工作委员会的第六份官方文件,探讨了另一个重要且特别棘手的话题:为身患绝症的癌症儿童提供援助。它为小儿肿瘤学界提供了一套实用的指导方针。对于病情逐渐恶化的儿童,应始终确保其在离世时没有不必要的身体疼痛、恐惧或焦虑。至关重要的是,他或她能获得足够的医疗、精神和心理支持,且孩子在任何时候都不会感到被遗弃。在癌症末期,姑息治疗应根据孩子和家庭的不同需求与愿望进行调整,目标是在剩余的日子里提供尽可能好的生活质量。

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