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“你感到无助,就是这样”:父母和年轻人对尿床的控制信念及其对实践的影响。

'You feel helpless, that's exactly it': parents' and young people's control beliefs about bed-wetting and the implications for practice.

作者信息

Morison M J, Tappin D, Staines H

机构信息

Reader in Health and Nursing, School of Social and Health Sciences, University of Abertay, Dundee, Scotland.

出版信息

J Adv Nurs. 2000 May;31(5):1216-27. doi: 10.1046/j.1365-2648.2000.01426.x.

Abstract

'You feel helpless, that's exactly it': parents' and young people's control beliefs about bed-wetting and the implications for practice Young people wet the bed when they fail to wake up to a full bladder. The causes of bed-wetting are far from certain and this uncertainty is reflected in the diversity of treatments on offer and the lack of any guarantee that treatment will work in a particular case. Most young people are sad and ashamed about the bed-wetting and want it to stop, but they vary widely in their belief in their own capacity to influence the situation, and in their optimism about what the future holds. The problem can persist into adolescence or even adulthood, with far reaching social and emotional consequences, both for the young people and their families. In an ethnographic study involving 19 families 'perceived helplessness' emerged as a key issue permeating the whole system and often activating a downward spiral, leading to abdication of effort and responsibility by the young people themselves, by their parents and sometimes by health care professionals. Informed by the insights gained from this study and an extensive review of the literature on perceived control the Family Perspectives on Bed Wetting Questionnaire has been developed to explore family members' feelings, degree of concern and dimensions of perceived control relating to: effort, ability, luck, important others and the unknown. This questionnaire was used as a basis for structured interviews with family members in a longitudinal survey, involving 40 families attending one of nine community-based, nurse-led enuresis clinics in Greater Glasgow. It was found that only 38% of the young people were entering into treatment with the belief that they had the ability to be dry at night. This became self-fulfilling, with only 33% achieving initial success of 14 consecutive dry nights in a 16-week period (chi-squared test, P=0.029). Seventy per cent of young people felt that luck was important, while most parents felt that luck had little part to play. Implications for practice include the need to assess the families' readiness to engage in treatment, to create opportunities for effective control and to encourage realistic expectations.

摘要

“你感到无助,就是这样”:父母和年轻人对尿床的控制信念及其对实践的启示 年轻人在膀胱充满尿液时未能醒来就会尿床。尿床的原因远未确定,这种不确定性反映在现有的各种治疗方法上,以及无法保证某种治疗方法在特定情况下会有效。大多数年轻人对尿床感到悲伤和羞愧,并希望尿床问题得到解决,但他们对自己影响这种情况的能力的信念以及对未来的乐观程度差异很大。这个问题可能会持续到青少年甚至成年期,给年轻人及其家庭带来深远的社会和情感后果。在一项涉及19个家庭的人种学研究中,“感知到的无助”成为贯穿整个系统的关键问题,常常引发恶性循环,导致年轻人自己、他们的父母,有时甚至是医疗保健专业人员放弃努力和责任。基于这项研究获得的见解以及对感知控制相关文献的广泛综述,开发了《尿床的家庭视角问卷》,以探索家庭成员的感受、关注程度以及与努力、能力、运气、重要他人和未知因素相关的感知控制维度。在一项纵向调查中,该问卷被用作与家庭成员进行结构化访谈的基础,该调查涉及40个家庭,这些家庭来自格拉斯哥大区九个以社区为基础、由护士主导的遗尿症诊所之一。结果发现,只有38%的年轻人开始接受治疗时相信自己有能力在夜间保持干爽。这就形成了自我实现的预言,在16周的时间里,只有33%的人取得了连续14个干爽夜晚的初步成功(卡方检验,P = 0.029)。70%的年轻人认为运气很重要,而大多数父母认为运气起的作用不大。对实践的启示包括需要评估家庭参与治疗的意愿,创造有效控制的机会,并鼓励现实的期望。

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