Andersson C, Mattsson E
Department of Physical Therapy, Karolinska Institutet, Huddinge, Sweden.
Dev Med Child Neurol. 2001 Feb;43(2):76-82. doi: 10.1017/s0012162201.
The purpose of this study was to describe problems and resources of adults with cerebral palsy (CP) with special emphasis on locomotion. A questionnaire concerning demographic facts, locomotion, musculoskeletal problems, and present physical activity was mailed to 363 adults with CP. Two hundred and twenty-one adults, (125 male and 96 female; mean age 36 years, range 20 to 58 years) answered the questionnaire. Seventy-seven per cent reported problems with spasticity. Eighty-four per cent lived in their own apartments, with or without home services. Twenty-four per cent worked full-time and 18% had full disability pension. Twenty-seven per cent had never been able to walk, 64% could walk with or without walking aids, 35% reported decreased walking ability, and 9% had stopped walking. Eighty per cent reported contractures and 18% had pain every day. Approximately 60% were regularly physically active, and despite their disability, 54% considered that they were not limited in their ability to move about in the community.
本研究的目的是描述成年脑瘫患者的问题和资源，特别强调运动能力方面。一份关于人口统计学信息、运动能力、肌肉骨骼问题以及当前身体活动情况的问卷被邮寄给363名成年脑瘫患者。221名成年人（125名男性和96名女性；平均年龄36岁，年龄范围20至58岁）回复了问卷。77%的人报告有痉挛问题。84%的人住在自己的公寓里，有无家庭服务均可。24%的人全职工作，18%的人领取全额残疾抚恤金。27%的人从未能够行走，64%的人能够借助或不借助助行器行走，35%的人报告行走能力下降，9%的人已停止行走。80%的人报告有挛缩，18%的人每天都疼痛。大约60%的人有规律地进行体育活动，尽管他们有残疾，但54%的人认为他们在社区中的活动能力没有受到限制。
