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越南结核病导致的恐惧与社会隔离:一项性别分析

Fear and social isolation as consequences of tuberculosis in VietNam: a gender analysis.

作者信息

Long N H, Johansson E, Diwan V K, Winkvist A

机构信息

Health Policy Unit, Ministry of Health, Hanoi, Viet Nam.

出版信息

Health Policy. 2001 Oct;58(1):69-81. doi: 10.1016/s0168-8510(01)00143-9.

Abstract

SETTING

The study was conducted in four districts in different regions of Vietnam.

OBJECTIVE

To describe the socio-economic consequences of tuberculosis (TB) in Vietnam with special reference to gender differentials concerning social stigma and isolation.

DESIGN

Sixteen focus group discussions were carried out with men and women, TB patients and non-TB participants. Data was analysed using modified grounded theory technique.

RESULTS

Generally, the participants had good knowledge about TB. However, knowledge and practice were not closely related in the sense that most non-TB participants perceived that TB can be successfully cured, while patients were seriously shocked when they were told that they had TB. Male patients often worried about economic-related problems, while female patients worried about social consequences of the disease. Both in the family and the community, isolation could be subtle, but it could also be obvious and had a tendency to continue much longer than medically justified.

CONCLUSION

Information on stigma and isolation due to TB and gender differences is important for understanding patient dynamics and its effects on the disease. Tuberculosis control programmes need better understanding of the gender differences in attitudes and beliefs to improve case-detection and treatment outcome.

摘要

背景

该研究在越南不同地区的四个区开展。

目的

描述越南结核病的社会经济后果,特别提及社会耻辱感和隔离方面的性别差异。

设计

与男性和女性、结核病患者及非结核病参与者进行了16次焦点小组讨论。采用改良的扎根理论技术对数据进行分析。

结果

总体而言,参与者对结核病有较好的了解。然而,知识与实践并非紧密相关,因为大多数非结核病参与者认为结核病可以成功治愈,而患者在被告知自己患有结核病时受到极大冲击。男性患者常担心与经济相关的问题,而女性患者则担心疾病的社会后果。在家庭和社区中,隔离可能很微妙,但也可能很明显,并往往持续远超医学合理期限。

结论

关于结核病导致的耻辱感和隔离以及性别差异的信息,对于理解患者动态及其对疾病的影响很重要。结核病控制项目需要更好地理解态度和信念方面的性别差异,以改善病例发现和治疗效果。

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