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小儿人工耳蜗植入的伦理维度

Ethical dimension of paediatric cochlear implantation.

作者信息

Nunes R

机构信息

University of Oporto School of Medicine, Portugal.

出版信息

Theor Med Bioeth. 2001 Aug;22(4):337-49. doi: 10.1023/a:1011810303045.

Abstract

In congenitally or prelingually deaf children cochlear implantation is open to serious ethical challenge. The ethical dimension of this technology is closely related to both a social standard of quality of life and to the uncertainty of the overall results of cochlear implantation. Uncertainty with regards the acquisition of oral communicative skills. However, in the western world, available data suggest that deafness is associated with the lowest educational level and the lowest family income. Notwithstanding the existence of a Deaf-World, deafness should be considered as a handicap. Therefore, society should provide the means for the fulfilment of a deaf child's specific needs. For the time being there is no definitive answer with regard the best way to rehabilitate a particular deaf child. Therefore, communitarian values may be acceptable. If the deaf child parents' decide not to implant, their decision should be respected. Guardians are entitled to determine which standard of best interest to use in a specific circumstance. They are the proper judges of what (re)habilitation process is best for their deaf child. However, most deaf children are born to two hearing parents. Probably, they will not be acculturated in the Deaf-World. It follows that cochlear implantation is a welcomed (re)habilitation technology. If auditory (re)habilitation will in the future provide the necessary communicative skills, in particular oral language acquisition, customs, values and attitudes of the hearing world should be regarded as necessary to accomplish a deaf child's right to an open future. If cochlear implantation technology will provide all deaf children with the capacity to develop acceptable oral communicative skills--whatever the hearing status of the family and the cultural environment--then auditory (re)habilitation will be an ethical imperative.

摘要

对于先天性或语前聋儿童,人工耳蜗植入面临严峻的伦理挑战。这项技术的伦理层面与生活质量的社会标准以及人工耳蜗植入总体效果的不确定性密切相关。在获得口语交流技能方面存在不确定性。然而,在西方世界,现有数据表明,耳聋与最低的教育水平和最低的家庭收入相关。尽管存在聋人世界,但耳聋仍应被视为一种残疾。因此,社会应提供满足聋儿特殊需求的手段。目前,对于如何以最佳方式使特定聋儿康复,尚无定论。因此,社群主义价值观可能是可以接受的。如果聋儿父母决定不进行植入,他们的决定应得到尊重。监护人有权决定在特定情况下采用何种最符合其利益的标准。他们是判断何种(康复)过程最适合其聋儿的合适人选。然而,大多数聋儿出生于听力正常的父母。很可能,他们不会融入聋人世界。由此可见,人工耳蜗植入是一项受欢迎的(康复)技术。如果未来听觉(康复)能提供必要的交流技能,尤其是口语习得,那么听力世界的习俗、价值观和态度应被视为实现聋儿拥有开放未来权利的必要条件。如果人工耳蜗植入技术能让所有聋儿都具备发展可接受的口语交流技能的能力——无论家庭的听力状况和文化环境如何——那么听觉(康复)将成为一项伦理要求。

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