Chipchase S Y, Lincoln N B
School of Psychology, University of Nottingham, UK.
Disabil Rehabil. 2001 Nov 20;23(17):768-76. doi: 10.1080/09638280110062158.
To examine the factors associated with strain in carers of people with multiple sclerosis (MS).
People with MS were recruited from an MS management clinic. Demographic information, memory, executive function, attention/concentration, mood, disability and health of the person with MS, the carer's opinion of the care-recipient's memory and disability, and the carer's mood were recorded. A postal questionnaire to identify factors associated with carer strain was sent to carers. A further questionnaire was sent to carers to examine the association between memory problems in people with MS and carer strain.
Problems with everyday memory and activities of daily living were found to be associated with carer strain. Strained carers perceived strain to be a consequence of the memory problems (p < 0.01). Aspects of the memory problems related to carer strain were the amount of time a carer could spend alone (p = 0.01), the carer's mood and less sympathetic feelings towards the person with MS (p < 0.05). Strained carers had more desire for other people to help the person with MS deal with the memory problems by themselves than carers who were not under strain (p = 0.03).
Carer strain was associated with memory problems experienced by people with MS.
研究与多发性硬化症（MS）患者照料者压力相关的因素。
从一家MS管理诊所招募MS患者。记录MS患者的人口统计学信息、记忆力、执行功能、注意力/专注力、情绪、残疾状况和健康状况，照料者对受照料者记忆力和残疾状况的看法，以及照料者的情绪。向照料者发送一份邮寄问卷，以确定与照料者压力相关的因素。向照料者发送另一份问卷，以研究MS患者的记忆问题与照料者压力之间的关联。
发现日常记忆和日常生活活动方面的问题与照料者压力相关。压力大的照料者认为压力是记忆问题的结果（p < 0.01）。与照料者压力相关的记忆问题方面包括照料者能够独自度过的时间量（p = 0.01）、照料者的情绪以及对MS患者较少的同情感受（p < 0.05）。与没有压力的照料者相比，压力大的照料者更希望其他人帮助MS患者自己应对记忆问题（p = 0.03）。
照料者压力与MS患者经历的记忆问题相关。
